Helpline 07939 046 030

Rarefest 2020

20 November 2020

Sign up for free

The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.

In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.

RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.

 Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!

Filter News

Filter by Date
Category
Reset

Runderpants 2021/22 Is Back!

Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!

Read More

TABI (Teen Appearance and Body Image) - CAR Research Study

Find out how you can take part in the Centre for Appearance Research's study for Young People

Read More

Nerve Tumours UK Challenge Yourself Week

Find out how you can get involved this summer with some of the biggest and greatest challenge events in the UK

Read More

Andrew’s NF1 Story

Read about Andrews inspirational NF1 story and how he wants to inspire others to achieve their goals!

Read More

Dexter’s NF Documentary Project

Dexter shares his motivations for taking on his NF documentary project & find out how you can watch it

Read More

World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social

Read More

A Big Thank You to all our Garden Runners!

Find out how our Garden Runners got on this World Neurofibromatosis Awareness Day - May 17 2021

Read More

Centre for Appearance Research (CAR) - Somali Heritage & NF Study

If you are from Somali heritage and have NF, the Centre for Appearance Research (CAR) want to hear from you.

Read More

Shine A Light 2021 Success!

Another incredible year, 92 buildings lighting up blue to Shine a Light on Neurofibromatosis as part of this year’s campaign

Read More