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Rarefest 2020

20 November 2020

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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.

In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.

RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.

 Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!

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Esme’s Summer of Slides

Esme's Summer of Sliding for NTUK!

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Diana’s One Month of Rowing for Neurofibromatosis

Diana is taking on an epic 150k rowing challenge - 5k per day to support her daughter Ellie & our NF community

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Kian’s NF2 Blog

Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics

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Autistica Research Festival 2021

See how this year's event went and find out how you can watch the best bits if you couldn't make the conference.

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OneMoreNurse joins the NTUK team in Leeds

We're delighted to announce our new Specialist NF Nurse for Leeds, find out more

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The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!

Check out the year's first major running event - see how our NTUK running team got on!

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Alex’s 12 months of Running

Alex has completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!

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Colin’s West Highland Walk for NF

Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.

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To Infinity & Beyond!

Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!

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