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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

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A man on a mission: Onno Faber and his NF2 journey

Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE

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Kate’s Story NF1

Kate describes her son's NF1 journey and how NTUK supported them

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World Mental Health Day

Your mental health is as important as your physical health

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Strictly Come Running: London Marathon Class of 2021

Congratulations to our class of 2021 London Marathon runners

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Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2021 NHS England NF2 meeting

Read more about the England NF2 meeting - working together to improve the experience of NF2 patients

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Eden Study

Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1

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Douglas Thomson’s NF1 Story

Douglas describes life with NF1 and how losing his leg was one of the best things to happen to him

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Tricia’s Wingwalk and Birthday Fundraiser for Sarah and Keith

Tricia's fundraising wingwalk in memory of her daughter Sarah who had NF1, and to remember her father Keith

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved