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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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“Charity Shave Off” for NF in Northern Ireland

Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:

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Noreen’s story

Have a read of Noreen's incredibly moving story here:

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New Research Study for Children and Young People with Neurofibromatosis Type 1

Find out more about the study and how you can participate here:

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Blackpool Magic Convention 2020

Find out more about the convention in aid of NTUK and how you can get involved here:

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Reflections on 2019

Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:

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Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

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Helen’s Story as told by her Mum Pauline

Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:

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Nicola’s NF2 Journey

Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:

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Making the Future of Work inclusive of persons with disability

Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved