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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Statement by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

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Ella’s Blog: The Flu Jab

Ella's updates on the impact of coronavirus on her daily life

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Working For The NF Community and Helping to Protect and Save The NHS

Coronavirus is impacting the NHS heavily including our Specialist NF Nurses; help us support them, find out how

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Chloe’s Story

Read Chloe's story with NF and her incredible journey into Adult Nursing

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Postponed: Medicine and Me: Living with Nerve Tumours at the Royal Society of Medicine

Postponed: Find out more about the event at the Medicine & Me event at the Royal Society of Medicine here:

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NF1 Teenager Support Day!

Bridie Windsor is a Deputy Clinical Nurse Specialist who has organised a support day for teenagers with NF1. Read more here:

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Callum Axford’s Story

Vote for Callum's nomination for Positive Role Model (Disability) in this years National Diversity Awards!!

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The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!

Check out our film & view the results from the film festival here:

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Noah’s Inspirational Fundraising Story

Noah Herniman, 14, raises over 1,000 Easter eggs for charity

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved