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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Nicks Triathlon in Support of his daughter Eilidh

Find out more about Nick's Triathlon and his daughter's experiences with NF1 here:

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An Adolescent Support Day for teenagers with NF1

Bridie Windsor is a Deputy Clinical Nurse Specialist who has organised a support day for teenagers with NF1. Read more here:

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Tom GK- Hearing Loss: The Musical

Find out more about the musical and how you can secure your ticket here

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New Research Study for Children and Young People with Neurofibromatosis Type 1

Find out more about the study and how you can participate here:

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Nurse’s Conference 2019

Find out more about this year's conference with our Nurses here:

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Nerve Tumours UK joins the “Embracing Complexity” Coalition

Find out more about the coalition we have decided to join

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Researching NF1

Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.

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Megan’s Journey

Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico

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Aldo goes to Primary School

Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved