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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Centre for Appearance Research NF Survey

Find out how you can take part in CAR's online survey about NF parenting and caring experiences.

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Take Part in Dexter’s NF Documentary Project

Dexter shares his motivations for taking on his NF documentary project, find out how you can get involved.

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Share your Covid-19 Story - Survey Results

Embracing Complexity share the results of their impact of Covid19 survey, find out more

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Sarah’s Journey

Read Sarah's personal journey with NF

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Hour of Power – Love Yourself Valentine’s Day workout for NF

Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!

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Rare Disease Day 2021 and Rare Reach Festival

Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!

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Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

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NF Said

Daisy takes on a 38-mile running challenge for her sister Millie, 1 mile a day for every person diagnosed with NF2 a year

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Love Yourself - Hour of Power in Support of the NF community

Get your sweat on and spread the love this Valentine's day for our NF community!

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved