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Welcome to our Nerve Centre
Keep up with the latest news and views from Nerve Tumours UK and across the NF community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We, at Nerve Tumours UK, are in the process of updating our medical publications and resources, in print and digital, to reflect the new names where relevant. This will however, not be reflected in our news section and other non-medical publications digital and print.
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Lynne Highy joins our team of Specialist NF Advisors
Read all about the newest addition to our team.
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NF Academy 2025: Georgia’s Blog
NTUK ambassador Georgia Baum shares her transformative experience of attending the NF Academy 2025 in Barcelona
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Craig’s story
Craig describes his mosaic NF2 related hearing loss, and how a cochlear implant & hearing aids have changed his life
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George’s Schwannoma Story
George shares his experience of being diagnosed with a schwannoma and why he's lacing up for NF awareness.
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JoJo’s NF1 Story
JoJo shares how her NF1 journey has affected her; how her pain and loss have become foundations of courage and resilience.
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Tristan’s Story: Hope & Resilience
Discover Tristan's NF1 story: Finding home, hope & the power of sport.
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10 mile walk for Lily
Read more about the 10 mile sponsored walk for Lily, organised by Claire, with her nursery team, family & friends taking part
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NF & Sport: Joy’s Journey
Find out more about the impact of sport on Joy's NF1 journey & how running changed her life forever.
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Safiya’s NF1 Journey
Find out more about Safiya & how her NF1 diagnosis has made her 'determined to make a difference'.
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the NF community.
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