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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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The International Rare Disease Showcase 1st – 3rd February 2022

The International Showcase is a unique & important event, with interactive sessions taking place from 1st-3rd February 2022

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Grace’s NF1 story - Nothing stops me

Grace tells us how her NF1 hasn't stopped her from being active and achieving her goals

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Mia’s NF1 story

Bridie & Warren describe their 17 month old daughter Mia's diagnosis with NF1

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Richard & Diana’s 1,000,000 metre new rowing challenge

Diana & Richard have taken on a 1,000,000 metre rowing challenge in 100 days to raise funds & awareness

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A Message from our Charity Director

A message from Karen, our Charity Director, on looking forward to a special 2022

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Childhood Neurological Conditions Survey Part 2

Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis

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Study - Resilient Youth with NF

Online Harvard Study for 12-17 year olds

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Owen’s Ball 2021

The Owen Family held their annual black tie fundraiser for NTUK

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Graham’s Super Nine Shines A Light on NF

Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved