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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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NF1 & our Xander

Xander's parents have a unique fundraiser raffle, especially for LITRPG fans, with the aim of raising awareness of NF

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RideLondon FreeCycle Sunday 29th May

Join Nerve Tumours UK on the official RideLondon Day 29th May 2022

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Hannah’s NF1 story

9 year old Hannah is running the Junior Great North Run, so other children with NF can also have access to doctors & nurses

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RAISING THE ROOF COMEDY NIGHT

First night on the NTUK 40 years Comedy Circuit 2022 at London's Backyard Comedy Club

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Chloe’s NF1 story

Chloe gives an honest assessment about coming to terms with having NF1 and how it has made her determined & strong

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“Happy Easter”

A message from Karen, our Charity Director, wishing you a very Happy Easter!

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Lisa helps Shine a Light on Neurofibromatosis in Belfast

Lisa has NF1, & lobbied the Belfast Lord Mayor to get Belfast City Hall lit up blue on Neurofibromatosis Day, 17th May

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Alex’s NF1 story

Alex describes her life with NF1, growing up in care, doing adaptive boxing & gym classes & getting NCFE Care qualifications

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Sumeeth’s Schwannoma story

Sumeeth, thought nothing of a muscle twitch after a hangover - it was the first symptom that led to a Schwannoma diagnosis

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved