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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Nerve Tumours UK takes part in the Genomics Showcase

Find out how you can take part in the Genomics showcase – sign up for free!

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Kate “NF1 Mummy” Your Questions on parenting answered:  World Neurofibromatosis Day 17 May 2021

Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day

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Jo’s 160 Mile walk for NTUK!

Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.

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NF2 & Identity Research Study

If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2

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Challenge 100 – Everyone’s invited

Take on 100 of anything you can think of and fundraise to support our NF community!

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A very “Happy Easter” to you all!

A message from Karen, our Charity Director, wishing you all a very Happy Easter!

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Stuart & William’s Story: Turning blue for World NF Month

Check out Stuart & William's creative fundraiser for World Neurofibromatosis Awareness Month

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Coordinated Care of Rare Diseases Study at UCL

Find out the results to the Coordinated Care of Rare Diseases Study at UCL

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Who is exempt from wearing a face mask? UK exemptions rules explained - and how to get a hidden disabilities exemption

Find out the up to date information on face mask rules in your area

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved