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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Living Different: Patricks’s NF2 Blog

Read his attempt to build people's understanding of the challenges with disabilities

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Beth’s Novasper Online Dog Show 2021

Find out how you can get involved in this year's fluffiest and loveable online dog show!

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Christian’s Story

Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!

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Tate’s Shine A Light Marathon

Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him

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Virtual Medical Meetings

Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend

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Connection Coalition

NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities

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Rare Disease Day 2021

Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021

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Kate, NF Mummy Community & Support

Kate tells us why she started the NF1 Mummy community group online

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Alex’s story - Support in the Workplace

Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved