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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

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Rare Disease Day 2022

Nerve Tumours UK joins events showcasing Rare Disease Day, hosted by the Genetic Alliance, on 28 February 2022

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Runderpants Winchester 2022

The Runderpants fun run makes a successful return to Winchester

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NF1 Research study with fly model

How can studying the brain of a fruit fly help with understanding of NF1?

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Stuart’s Schwannoma Story Part Two

Stuart's update takes us through the operation to remove the Schwannoma, recovery and getting back to marathon training.

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Sian & Connor’s story

Sian & Connor describe the invaluable support from NTUK during her pregnancy with baby Reuben

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Anita, aka Fat Lady Slim, is running the London Marathon for NTUK

Anita is fundraising on behalf of niece Sophie & great-niece Lexie who have NF2 by running the London Marathon

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Neurofibromatosis 1 in the 21st Century

Professor Rosalie Ferner delivers key speech “Neurofibromatosis 1 in the 21st Century” to the BPNA 2022 Annual Conference

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The International Rare Disease Showcase 1st – 3rd February 2022

The International Showcase is a unique & important event, with interactive sessions taking place from 1st-3rd February 2022

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved