Join the nerve tumours community!
Come and be a part of the nerve tumours community, connecting with and inspiring others.
Megan Crews is a 30 year-old special needs tutor in Salisbury. She recently spoke out in
The Sun about the prejudice people with NF face, and about being open and unembarrassed about her NF1. Here she tells more of her story.
Read Olivia's amazing story, and brave attitude as she lives her life to the fullest despite her NF. “NF is part of me – without it I don't know who I'd be, and I am happy with the person I am”Read Olivia's Story
"That's why I am proud of my NF beacuase it's part of who I am and I have learnt to accept it." Have a read of Gabriella's story; a brave, kind and intelligent young girl who takes her NF in her stride everyday!Read more
"As I got older I learnt to deal with it, going through school people would call me names because I had a lot of freckles on my neck. I did not take any notice of the bullying because freckles are a sign of beauty." Have a read of Grace's story and she overcame her insecurites surrounding her NF and now lives her life as every confident 22 year old girl should!Read more
"I may fall but I'm going to continually pick myself up and start again, each days different a new start in a new life, today we’ll stand together for Nerve Tumours as we know there’s still no cure , but if we stand together I believe we can do it! " Have a read of Jaycee's incredible story and how she has overcome some major difficulties in her life but even at such a young age maitains a hugely positive outlook on life!Read More
Sophia and Harvey's Story
"Despite all that, Harvie is a happy little boy who enjoys nursery and loves his favourite things like cars and motorbikes." Have a read of Sophia's caring story about her son Harvey's struggles of dealing with NF from an early age, but still manages to live his life as a happy young boy.Read More
"I love him, and I couldn't be without him, regardless of whether he was sick or healthy." Lucy's husband has been through some extremely tough times but their relationship has stood strong and she has supported him throughout. Have a read of their love filled story and how they have both fought NF together!Read More
Polly's Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all" Polly is a happy, fun, loving superstar. She never fails to make her family smile despite her struggles with NF. Have a read of her uplfiting story (told by her Mum Emily) hereRead More
"My parents say this is a battle I can win, and I for one believe them!" Have a read of Ella's story here: She has been going through some tough times, but is staying strong with the loving support she gets from her entire family. Like Ella we believe this is a battle she can win! 😊Read More
"I am not the girl who has NF1, I am just me. My advice would be to ignore anyone who stares or questions your lumps and bumps. I like to think of them as my super power as they make me different from everyone else." Have a read of Bronte's incredible story, from dealing with her NF1 to travelling round Asia, to even studying in Hungary for a year. She is even set to graduate from Nottingham Trent with a degree in Psychology later this year!Read More
Gemma is 30 years old. She has a BSc in Biology and works as a retail manager at a motorway service station. She got married in June 2018. Here she tells us about life for her with NF2Read More
"Since then I have had a renewed drive to live life to the fullest and show others with NF and their parents that id need not be a barrier to anything they want to achieve. "
Have a read of Adam's incredible story and how he has undergone some incredible athletic fundraisers and challenges despite complications arising from his NF1.Read More
We are Family London Marathon
"If Gaby could cope with the day to day battles she faces as an NF sufferer, then I could cope with a few difficult hours. I was even given a medal for it, it seems wrong that Gaby isn’t."
Have a read of the remarkable journey the White family have undergone in support of their young daughter Gaby who has NF.Read More
Luke and hs NF Ninjas
"My son and daughter also have NF1 and I will make sure they grow up proud of their NF and that they are very special!"
Have a read of Luke's loving story about his own journey with NF1 and how he plans to bring up his own children proud of their NF here:Read more
" I want people to know that NF1 comes in all types of ways."
Dan wants everyone to know that NF1 comes in different forms. Have a read of his courageous story here:Read more
Tom Hazell is 37, works in IT, lives in Essex with his long-term partner, and likes online gaming and watching films and sport. He also has NF2/Schwannomatosis. Here he explains his outlook on life:Read More