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Join the nerve tumours community!

Come and be a part of the nerve tumours community, connecting with and inspiring others.


Olivia's Story

Read Olivia's amazing story, and brave attitude as she lives her life to the fullest despite her NF. “NF is part of me – without it I don't know who I'd be, and I am happy with the person I am””

Read Olivia's Story
Fundraiser's Story

Butterfly Kisses

The Saavedra family's amazing fundraising story, setting up The Butterfly Kisses Ball to help their son Emilio and all people with NF1.

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Fundraiser Story

Daniel & Eloisa

“I was overcome with emotions completing the race as I know how much the donations will make a difference in people’s lives…”

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Case Study

Alexander's Story

Alexander hasn't let his NF1 hold him back, and in July graduated from the University of Reading, with a 2:1 degree in Theatre Arts, Education and Deaf Studies.

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Fundraiser Story

Wayne's Marathons

“Crossing that line still is the best feeling in the world and each year it gets better and better…”

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Gabriella's Story

“That's why I am proud of my NF beacuase it's part of who I am and I have learnt to accept it.” Have a read of Gabriella's story a brave kind and, intelligent young girl who takes her NF in her stride everyday! 

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