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If you have Neurofibromatosis, we're here to help you.

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Shine A Light on Neurofibromatosis

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"Stay positive, live your life as you would do..."

Read Kieran's story

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Shine A Light

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and promotes research on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

#MyVisibleDifference Changing Faces

#MyVisibleDifference Changing Faces - Nerve Tumours UK attended the of My Visible Difference Report by Changing Faces

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Thankyou to our Vitality London 10,000 Runners

Have a read about what our runners are undertaking for NTUK today in the heart of the capital

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Register to attend our NF1 information day in Carlisle

The day is designed so that our specialists can give you information and insight about NF1

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved