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If you have Neurofibromatosis, we're here to help you.

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Neurofibromatosis & COVID-19 (Coronavirus)

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Over 26,500 people are depending on you. (No pressure.)

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Shine A Light on Neurofibromatosis

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Shine A Light

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, by making sure those affected have access to the help they require.  

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Statement by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

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Ella’s Blog: The Flu Jab

Ella's updates on the impact of coronavirus on her daily life

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Working For The NF Community and Helping to Protect and Save The NHS

Coronavirus is impacting the NHS heavily including our Specialist NF Nurses; help us support them, find out how

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voluntary
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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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