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If you have Neurofibromatosis, we're here to help you.

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Over 26,000 people are depending on you. (No pressure.)

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End the postcode lottery. Help us add #OneMoreNurse.

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"Stay positive, live your life as you would do..."

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#OneMoreNurse Appeal

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK campaigns, provides support and funds research on behalf of over 26,000 people in the UK who have Neurofibromatosis (NF1 and NF2), Schwannomatosis and Legius Syndrome. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Meet Megan

Megan Crews is a 30 year-old special needs tutor in Salisbury. She recently spoke out in The Sun.

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How does your visible difference affect you?

Researchers would love to understand your experience of how a visible difference affects your daily life

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Gabriella’s Story

"I believe everyone should think the same and be kind to people however they look and whatever condition they have."

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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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