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If you have Neurofibromatosis, we're here to help you.

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Over 26,000 people are depending on you. (No pressure.)

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End the postcode lottery. Help us add #OneMoreNurse.

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"Stay positive, live your life as you would do..."

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#OneMoreNurse Appeal

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and promotes research on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Runderpants Bangor 2019

Have a read about the unqiue but extremely successful event that was Runderpants Bangor 2019

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Nerve Tumours UK joins up with Face Equality International’s Alliance

We have joined Face Equality International Alliance in an attempt to end discrimination to those with facial differences

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Bronte’s Story

Have a read of Bronte's story about how she continues to enjoy living her incredibly adventorous and ambitous life

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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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