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Shine A Light on Neurofibromatosis

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"Stay positive, live your life as you would do..."

Read Kieran's story

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Shine A Light

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the National NF2 CQuinn Meeting in Manchester.

Have a read about what was talked about at this year's National NF2 CQuinn Meeting in Manchester

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Nerve Tumours UK adds BrowseALoud to their website

Have a read about the new software we have uploaded to our website in order to make it more accessible to everyone.

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11 year old inspired to run 31 miles within 8 hours for his brother who has NF

Have a read about young Will's remarkable achievement that has been inspired by Adam Jacob's story on our website

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved