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Neurofibromatosis & COVID-19 (Coronavirus)

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Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, by making sure those affected have access to the help they require.  

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Share your Covid-19 Story

Help us understand the positive and negative impact of Covid19 on you, your loved ones & carers.

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We’re Here for You, Our NF Community.

A big thank you from Karen our Charity Director - your support has been amazing!

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Global Genes LIVE!

Join Global Genes September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit.

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved