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If you have Neurofibromatosis, we're here to help you.

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Over 26,500 people are depending on you. (No pressure.)

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Shine A Light on Neurofibromatosis

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"Stay positive, live your life as you would do..."

Read Kieran's story

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Shine A Light

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Insights into the work of our support specialists from Mel Murrell

Meet one of our Support Specialists Mel Murrell and read about her impressions on her first year in the role

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World At Her Feet

Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:

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Arooj: The Fashion Blogger with NF

Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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