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If you have Neurofibromatosis, we're here to help you.

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Over 26,500 people are depending on you. (No pressure.)

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Shine A Light on Neurofibromatosis

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"Stay positive, live your life as you would do..."

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Shine A Light

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

2019 NF Conference

Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF

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Nerve Tumours UK joins the “Embracing Complexity” Coalition

Find out more about the coalition we have decided to join

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Kate Swallow’s Fantastic Fundraiser at the Tipsy Pig

Find out more about the succesful and throughly enjoyed charity music event hosted by Kate Swallow at the Tipsy Pig

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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