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Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, by making sure those affected have access to the help they require.  

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

European Neurofibromatosis Meeting 2020

Find out more and attend the public day virtually

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Rarefest 2020

RAREfest20: a free virtual, interactive science, technology, advocacy & arts exhibition with a rare twist. Visit exhibition

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Living Different: Patricks’s NF2 Blog

Read his attempt to build people's understanding of the challenges with disabilities

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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