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If you have Neurofibromatosis, we're here to help you.

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Over 26,000 people are depending on you. (No pressure.)

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Every day in the UK, a child is born with nerve tumours.

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"Stay positive, live your life as you would do..."

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Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK campaigns, provides support and funds research on behalf of over 26,000 people in the UK who have Neurofibromatosis (NF1 and NF2), Schwannomatosis and Legius Syndrome. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

The Big Lottery Fund pays for 2 Patient Info Days

Nerve Tumours UK receives Lottery funding

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New research into non-discrimination law

Durham University is looking for participants who look different due to their health complications. such as NF.

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Letter from our new Chair

A letter detailing the vision of our new chair, and the future of the charity.

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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved