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If you have Neurofibromatosis, we're here to help you.

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Shine A Light on Neurofibromatosis

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"Stay positive, live your life as you would do..."

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Shine A Light

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and promotes research on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Shine a Light 2019 Success!

Check out some of the stunning photos from our extremely successful Shine a Light On Neurofibromatosis 2019 campaign

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Nerve Tumours UK attends Royal College of Nursing Congress

Find out more about the RCN Congress and Nerve Tumours UK participation here:

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Ava’s amazing work on World NF Awareness Day

15 year old Ava managed to generate awareness across the World as part of WNFAD read more about it here:

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We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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