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If you have Neurofibromatosis, we're here to help you.

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Over 26,000 people are depending on you. (No pressure.)

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Every day in the UK, a child is born with nerve tumours.

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"Stay positive, live your life as you would do..."

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Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK campaigns, provides support and funds research on behalf of over 26,000 people in the UK who have Neurofibromatosis (NF1 and NF2), Schwannomatosis and Legius Syndrome. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

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Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

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Latest News

Arooj: The Fashion Blogger with NF

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Advisory group of parents needed to help shape future research

Maia Thornton is a PhD student looking for an advisory group of parents who's child has an appearance altering condition

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Olivia’s Story

Olivia is an enthusiastic and determined young girl. Have a read of her inspiring story here!

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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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