Helpline 07939 046 030

Home

If you have Neurofibromatosis, we're here to help you.

Find out more

Over 26,000 people are depending on you. (No pressure.)

Find out more

End the postcode lottery. Help us add #OneMoreNurse.

Find out more

"Stay positive, live your life as you would do..."

Read Kieran's story

Here to help

Get involved

#OneMoreNurse Appeal

Kieran's Story

Working for the nerve tumours community

Nerve Tumours UK provides support and information, as well as campaigns and promotes research on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.

Kieran's Story

“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”

Read more

Emily's Story

Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…

Read more

Latest News

Runderpants Bangor 2019

Have a read about the unqiue but extremely successful event that was Runderpants Bangor 2019

Read More

Nerve Tumours UK joins up with Face Equality International’s Alliance

We have joined Face Equality International Alliance in an attempt to end discrimination to those with facial differences

Read More

Bronte’s Story

Have a read of Bronte's story about how she continues to enjoy living her incredibly adventorous and ambitous life

Read More

We
are funded
100% by
voluntary
donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved