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Neurofibromatosis & COVID-19 (Coronavirus)

Additional information concerning Coronavirus (COVID-19) for people diagnosed with Neurofibromatosis

We’re aware that COVID-19 is causing a lot of uncertainty for many and here at Nerve Tumours UK we are fully dedicated to the health and well-being of our NF community, and as such issues the following information as the outbreak has now started to impact our community.

People should check with their own doctors if in any doubt, and we strongly recommend that you follow all Government & national medical guidelines during this period. You can download the information here.

For governmental guidance on social distancing for everyone in the UK and the protection of older people and vulnerable adults click the button below.

Those in the high risk groups will have received a letter from the NHS if they need to stay at home for 12 weeks. This might help clarify to most of those with NF that they are not at any higher risk of catching it than the general population.  

 

In addition to our health, many people are struggling because they are unable to work. Some may even have lost their jobs or have reduced income.

Please do have a look at these affiliated charities for further help and information.

Carers UK

Carers UK is there with support, information and advice for carers that might be affected by the corona crisis.
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Visit Website
Gov.uk

A range of extra support and measures will be in place to help workers, benefit claimants and businesses affected by coronavirus.
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Visit Website
Scope

Scope is a national disability charity that campaigns to challenge and change negative attitudes about disability and provides direct services. They will support you and your rights in these difficult times.

Visit Website
Turn2Us

Turn2us is a national poverty charity helping people when times get tough gain access to welfare benefits, charitable grants & other financial help – online, by phone and face to face through our partner organisations.

Visit Website
Stepchange

Stepchange provides a benefit checker to see if you may be entitled to make a claim. Encouraging you to contact your bank, landlord or anyone you owe money to, asking for payment flexibility at this time.

Visit Website

In these difficult times of possibly losing contact with the outside world remember there different ways to stay active and socialise. Follow us on social media for further information.

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Statement by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

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Ella’s Blog: The Flu Jab

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Bridie Windsor is a Deputy Clinical Nurse Specialist who has organised a support day for teenagers with NF1. Read more here:

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Vote for Callum's nomination for Positive Role Model (Disability) in this years National Diversity Awards!!

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Check out our film & view the results from the film festival here:

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Noah Herniman, 14, raises over 1,000 Easter eggs for charity

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