Additional information concerning Coronavirus (COVID-19) for people diagnosed with Neurofibromatosis
We’re aware that COVID-19 is causing a lot of uncertainty for many and here at Nerve Tumours UK we are fully dedicated to the health and well-being of our NF community, and as such issues the following information as the outbreak has now started to impact our community.
People should check with their own doctors if in any doubt, and we strongly recommend that you follow all Government & national medical guidelines during this period. You can download the information here.
For governmental guidance on social distancing for everyone in the UK and the protection of older people and vulnerable adults click the button below.
Those in the high risk groups will have received a letter from the NHS if they need to stay at home for 12 weeks. This might help clarify to most of those with NF that they are not at any higher risk of catching it than the general population.
Due to increased queries and incoming calls our helpline is now open Mondays and Wednesdays from 9am to 5pm and as a temporary measure on Tuesday, Thursday and Friday from 9am to 12pm for further details click the button below.
In addition to our health, many people are struggling because they are unable to work. Some may even have lost their jobs or have reduced income.
Please do have a look at these affiliated charities for further help and information.
Scope is a national disability charity that campaigns to challenge and change negative attitudes about disability and provides direct services. They will support you and your rights in these difficult times.Visit Website
Turn2us is a national poverty charity helping people when times get tough gain access to welfare benefits, charitable grants & other financial help – online, by phone and face to face through our partner organisations.Visit Website
Stepchange provides a benefit checker to see if you may be entitled to make a claim. Encouraging you to contact your bank, landlord or anyone you owe money to, asking for payment flexibility at this time.Visit Website
In these difficult times of possibly losing contact with the outside world remember there different ways to stay active and socialise. Follow us on social media for further information.
Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life
Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!Read More