Manchester University NF1 MEK Inhibitors Research

MEK Inhibitors and Learning

A new research project for young people 

Does your child, aged 11-18, have NF1 and currently use MEK inhibitors?
Manchester University have asked us to share this invitation to participate in new research.

Children with NF1 are more likely to have some trouble with learning, memory and/or paying attention than their classmates. Right now, we don’t fully understand why this is and there aren’t any treatments that specifically help with these problems in NF.

We hope this study will help us understand more about how the brain works in NF1, and how MEK inhibitors work in the brain, which one day may lead to new treatments just for these difficulties. In this part of the study we are looking for young people (aged 11-18) who take MEK inhibitors to talk to us about taking the medication and tell us about any effects on their learning and related skills.

If you’re interested in finding out more or taking part, please email: nfresearch@manchester.ac.uk