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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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New Research Study for Children and Young People with Neurofibromatosis Type 1

Find out more about the study and how you can participate here:

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Nurse’s Conference 2019

Find out more about this year's conference with our Nurses here:

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Nerve Tumours UK joins the “Embracing Complexity” Coalition

Find out more about the coalition we have decided to join

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Researching NF1

Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.

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Megan’s Journey

Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico

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Aldo goes to Primary School

Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here

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Eva’s Races

Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:

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Carl’s Story in memory of his sister who had NF2

Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:

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Coordinated Care of Rare Diseases Study at UCL

Find out more about the study and how you can take part here:

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved