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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Shine a Light 2020 Success!

Check out some amazing blue buildings that took part in our Shine a Light On Neurofibromatosis 2020 campaign

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Sarah’s Story as told by her Father Clemence

Read more about Sarah's story and her Shining a Light on NF from home for World NF Awareness Day!

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Statement by Helen Tomkins our Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Helen Tomkins specialist Neurofibromatosis nurse in Devon & Cornwall

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Courtney’s Story

Read more about Courtney's NF Story and how she overcomes her difficulties

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Shine A Light on Neurofibromatosis 2020

Find out what we're up to for our Shine A Light campaign this year!

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Statement by Michael Fry our Chair of the Board of Trustees

The impact of the corona virus on the charity sector and Nerve Tumours UK's continued support to those affected by NF

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NF1, Plexiform Neurofibromas Market Research Study

Find out more about an NF1, Plexiform Neurofibromas market research survey

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Statement by Rachel Jones & Rebecca Rennison our Specialist Neurofibromatosis Nurses UK

A statement on coronavirus by Rachel Jones & Rebecca Rennison specialist Neurofibromatosis nurses in the North East & Cumbria

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Statement by Samantha Gaden our Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Samantha Gaden specialist Neurofibromatosis nurse in the North West

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

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