Latest News
and Events

Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.

Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021

Kate tells us why she started the NF1 Mummy community group online

Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment

Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.

Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!

Find out how you can take part in the Genomics showcase – sign up for free!

Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day

Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.

If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved