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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Laura’s NF1 story

Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1

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Kian’s NF2 Blog

Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics

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Disfigurement equality at work - research

This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements

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RAISING THE ROOF: CHARITY COMEDY NIGHT IN AID OF NERVE TUMOURS UK

Join us in London on our first comedy night to celebrate 40 years of Nerve Tumours UK

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NF1 stem cell research study

Julieta is carrying out stem cell research to understand brain development in those with NF1

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Ava-Lily’s NF1 story

Ava-Lily is thriving at school despite various NF1 related difficulties - read her story

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Westminster Virtual Rare Disease Day 2022 Reception

NTUK joined the annual international event aimed at raising awareness & highlighting the needs of people with rare diseases

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Tate found his 2022 challenge!

Support Tate with his 2 day Shine A Light marathon!

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Noreen’s story

Read Noreen's incredibly honest & moving blog about living with NF1

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved