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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Rare Disease Day 2021

Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021

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Kate, NF Mummy Community & Support

Kate tells us why she started the NF1 Mummy community group online

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Alex’s story - Support in the Workplace

Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment

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A Colourful 5K Challenge

Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.

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Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!

Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!

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Nerve Tumours UK takes part in the Genomics Showcase

Find out how you can take part in the Genomics showcase – sign up for free!

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Kate “NF1 Mummy” Your Questions on parenting answered:  World Neurofibromatosis Day 17 May 2021

Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day

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Jo’s 160 Mile walk for NTUK!

Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.

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NF2 & Identity Research Study

If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved