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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Carers Rights Day. Diane’s Story

Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK

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NF1 PN Impact on Patients’ and Caregivers’ Lives

If you have NF1 with plexiform neurofibromas or you care for someone with NF1 PN help shape future healthcare support

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Shae’s Story

Read Shae's journey with NF and how she is taking life head on.

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24 Hour Marathon – Three Brothers Running for the Fourth

Toby, James & Alex take on an epic 24 hour marathon race to commemorate their brother Tristan

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Centre for Appearance Research NF Survey - Results

Find out how you can take part in CAR's online survey about NF parenting and caring experiences.

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Share your Covid-19 Story - Survey Results

Embracing Complexity share the results of their impact of Covid19 survey, find out more

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Sarah’s Journey

Read Sarah's personal journey with NF

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Hour of Power – Love Yourself Valentine’s Day workout for NF

Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!

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Rare Disease Day 2021 and Rare Reach Festival

Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved