Rarefest 2020
20 November 2020
Sign up for free
The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/IMG_0096_tiger_370x280_800_600_s_c1.jpg)
Runderpants fun run
Get your Runderpants here! Set up a fun run wearing some special fundraising pants
Read More![](https://nervetumours.org.uk/images/made/images/common/Sarah_Cockroft_2_website_370x280_800_600_s_c1.jpg)
Meet Sarah, our new Specialist NF Nurse
Sarah will be based in Leeds, supporting families across Yorkshire and Humberside
Read More![](https://nervetumours.org.uk/images/made/images/common/Charmaine_Forrester_800_600_s_c1.jpg)
Meet Charmaine, Our New Specialist NF Nurse
Read More![](https://nervetumours.org.uk/images/made/images/common/FB_IMG_1667295994710_370x280_800_600_s_c1.jpg)
Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read More![](https://nervetumours.org.uk/images/made/images/common/20230517_190605_370x280_800_600_s_c1.jpg)
Eashan’s NF1 story
'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.
Read More![](https://nervetumours.org.uk/images/made/images/common/20580-Ratios-Bus-Press-Advert-225x168_New_code_Low_res_370x280_800_600_s_c1.jpg)
2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read More![](https://nervetumours.org.uk/images/made/images/common/CAR_VTCT_logo_370x280_800_600_s_c1.jpg)
Disclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison
Read More![](https://nervetumours.org.uk/images/made/images/common/Jo__Oscar_370x280_800_600_s_c1.jpg)
Jo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read More![](https://nervetumours.org.uk/images/made/images/common/NL_and_HRH_Pune_with_photo_370x280_800_600_s_c1.jpg)
Nigel’s story - Normal is as normal does
Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2
Read More