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Rarefest 2020

20 November 2020

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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.

In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.

RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.

 Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!

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Tricia’s Wingwalk fundraiser

Tricia describes her wingwalk experience in celebration of her 75th birthday and in memory of her daughter Sarah, who had NF1

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Stuart’s Schwannoma story

Stuart describes how certain symptoms led to a Schwannoma discovery

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Joy’s NF1 story

Joy describes living with NF1; her son's diagnosis and support at school; fundraising and shining a light on NF

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Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

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A man on a mission: Onno Faber and his NF2 journey

Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE

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Kate’s Story NF1

Kate describes her son's NF1 journey and how NTUK supported them

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World Mental Health Day

Your mental health is as important as your physical health

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Strictly Come Running: London Marathon Class of 2021

Congratulations to our class of 2021 London Marathon runners

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Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2021 NHS England NF2 meeting

Read more about the England NF2 meeting - working together to improve the experience of NF2 patients

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