Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
Filter News
Looking Back, Moving Forward: A Message from Our Charity Director
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Oliver’s Blog
Oliver Bromley shares some personal experiences of visible difference, and how education and kindness can reduce stigma
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Ellen’s Story
Read Ellen's story, how she recovered from 'radical surgery' and why she's raising funds for NTUK.
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Celebrating Trustees Week
It's National Trustee Week: Meet the people who keep NTUK moving.
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Men’s Health Month
We're making sure that men with NF are prioritising their health, both in and out of the workplace.
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Irfan’s Story
Irfan discusses his NF journey, how he transformed uncertainty and isolation into community and understanding.
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Kelly’s Story
Find out how Kelly discovered her confidence after overcoming testing years at school and college.
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Awareness Walks
Raise awareness with an organised walk within your community. We've put together some pointers to help you with planning.
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Meena’s Awareness Raising Coastal Walk
NTUK trustee Prof. Meena Upadhyaya treks the Welsh coast to raise awareness of NF and rare diseases.
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