Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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![](https://nervetumours.org.uk/images/made/images/common/IMG_3266_370x280_800_600_s_c1.jpg)
Eva-Hope’s NF2 story
Tahlia describes how the family felt after receiving daughter Eva-Hope's NF2 diagnosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Adults_4_cover_370x280_800_600_s_c1.jpg)
My Neuro Survey 2024
Fill out #MyNeuroSurvey and help to improve treatment, care and support for everyone affected by neurological conditions.
Read More![](https://nervetumours.org.uk/images/made/images/common/VTCT_cover_370x280_800_600_s_c1.jpg)
VTCT Foundation Showcase
Find out about this event which showcases projects and research supported by the VTCT Foundation
Read More![](https://nervetumours.org.uk/images/made/images/common/Rosalie_Ferner2_370x280_800_600_s_c1.jpg)
2024 Friedrich von Recklinghausen Award
Professor Rosalie Ferner, Trustee and Member of the Nerve Tumours UK Medical Advisory Board receives this year's award
Read More![](https://nervetumours.org.uk/images/made/images/common/Trustees_2023_370x280_800_600_s_c1.jpg)
Become a Trustee
Nerve Tumours UK are looking for at least two new trustees to join the Board. Find out more
Read More![](https://nervetumours.org.uk/images/made/images/common/Liz_Barton_370x280_800_600_s_c1.jpg)
Liz’s NF1 story: This is the real me
Liz describes growing up with NF1, difficulties at school, spinal surgery and raising awareness by writing a poem about NF.
Read More![](https://nervetumours.org.uk/images/made/images/common/Contact_logo_for_joint_work_Pears_370x280_800_600_s_c1.jpg)
Stronger Together Rare Conference
Read this review of the conference and find out where to access further support
Read More![](https://nervetumours.org.uk/images/made/images/common/Gisela_wearing_NTUK_Tshirt_370x280_800_600_s_c1.jpg)
Gisela’s NF2 story
Gisela has NF2 & has a positive outlook on life, she has just completed a 265km walk during World NF Awareness Month
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