Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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Lily: A little girl with a contagious smile
Learn all about Lily's NF1 diagnosis and how that led to incredible efforts to raise awareness and fundraise.
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A New Collaboration: Ian Duggan British GT
Ian is racing in the British GT Championship, and will be sporting the NTUK Logo on his racing car and driving suit.
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Lilly’s Story: Growing Up With NF1
In 2019, Lilly and her family featured in our ‘Shine a Light on Neurofibromatosis’ short film. Find out how she's getting on.
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Improving the delivery of Genetic Results Survey
Survey: How did you receive your genetic results? Could we do it better?
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Sonny’s NF1 story
Sonny, 3 years old, faces daily challenges but shows incredible strength, determination, and resilience. Read his story.
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Great North Run 2026
Read more about this iconic half-marathon, and find out how to apply for 2027.
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Manchester University NF1 MEK Inhibitors Research
Research: NF1 MEK Inhibitors and Learning
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