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London Marathon Motivation 2026

01 April 2026

London Marathon day is emotional and inspirational for runners and supporters alike. The event helps raise invaluable awareness and fundraising for the NF community and is a great opportunity for us to meet one another. 

The NTUK head office team are looking forward to seeing our runners and providing encouragement at the start line, along the route, in the stands on The Mall and then in St James Park to meet and greet our runners and their support groups after the race. We've got 35 runners in London, and another 2 doing London Marathon 'My Way'.

Our Team NTUK runners have taken on this bucket-list challenge as it's "a cause close to our hearts". Some of them have shared why supporting the NF community matters to them. Read their stories below.

Could it be your turn next year?
Register your interest to run for Team NTUK at the 2027 London Marathon.

Nico McBain

"This will be my 3rd London Marathon supporting the charity. My sister Emir has NF and like most other charity fundraisers, it’s close to our hearts. Excited to run for a charity so close to our family. Cannot wait. Going to be an emotional day."

Nico's fundraising page

Ryan Galpin

"My training is going well and I’m looking forward to race day! I am supporting Nerve Tumours UK because a close family member suffers from NF1. Nerve Tumours UK have done a lot for her and I would like to give something back!"

Ryan's fundraising page

Lilian Baldwin

"I'm running with NTUK because my brilliant Auntie, Anna Lickley, had NF2. She ran the London Marathon twice herself, and sadly passed away in July 2024. I'm running to celebrate her and to raise money for a cause close to my family's heart."

Lillian's fundraising page

Myles Stringer

"I’m running the London Marathon because my little boy, Rory, was born with NF1 and has a plexiform fibroma behind his eye. I want to do what I can to support families affected by NF1 and help drive better research, treatment, and long-term outcomes."

Myles' fundraising page

Louise Brown

"I am very excited to be running my first marathon. It is an honour to be running in support of Nerve Tumours UK which is close to the heart of my best friend’s family. I am pleased to be able to raise awareness and lots of money for this great cause."

Louise's fundraising page

Matt Walmsley

"I’m a cyclist, so it’s got to be something special to make me get off my bike! That very special reason is our daughter Matilda. About 2 years ago we discovered that Matilda has a brain tumour as a result of this condition."

Matt's fundraising page

Adrian Maj

This will be Adrian’s 11th consecutive London Marathon for NTUK, in support of his niece, who has NF1.

Adrian's fundraising page

Jarryd Hillhouse

"Living with NF1 brings uncertainty, but endurance sport has reframed it for me. That’s why I chose to run for Nerve Tumours UK - to give back to a community that supports people living with NF1 and to raise awareness of a condition often misunderstood."

Jarryd's fundraising page

Jayna Patel

"I’m taking part in the marathon because my two year old nephew was diagnosed with NF1 last April. It’s a cause that’s very close to my heart, and being able to run for it means a great deal to me. His smile is my reason."

Jayna's fundraising page

Richard Baxter

"Proud to be supporting such an important cause, so many people are affected by NF2, we need more people to be aware and to support and together we can tackle it and make the lives better of the people, especially the children who are affected."

Richard's fundraising page

Denise Forin

"I’m running the 2026 London Marathon to make a difference, support a meaningful cause, and prove to myself that I can go further than I ever imagined."

Denise's fundraising page

Kayleigh Blackburn

"NF1 brings a lot of uncertainty & a loss of control. We had never really heard of NF1 before I found it on Google back in Sept 2023, and our family/friends hadn’t heard of it prior to Lily’s diagnosis in Dec 2024. This was something we wanted to change."

Kayleigh's fundraising page

Pete Burbridge

Following Lilly’s NF1 diagnosis, the Burbridge family have taken part in multiple awareness and fundraising events over the years. Lilly’s mum Sarah ran last year... this year, it’s Lilly’s dad Pete lacing up his running shoes for the London Marathon.

Pete's fundraising page

Tracy Hodge & son Sam

"Until Sam found out about his tumour, we had no idea that NF1, NF2 and Nerve Tumours UK existed, let alone how they can change your life in literally one second. This year, Sam & I are running the 26.2 miles of London Marathon My Way - a family event!"

Tracy & Sam's fundraising page

"In December 2022, my son Sam discovered he had a nerve tumour in his spine, which was a result of a nerve cell mutating. Sam endured a long operation that month, the day after Boxing Day in fact, to remove a 9 inch tumour from his spine, and started on his recovery journey which involved him learning to walk again, regaining his fitness and regaining his strength. 

In late 2023, Sam discovered there were more tumour pieces further up his spine. The only option was radiotherapy and Sam underwent 33 sessions of radio in early 2024, from his brain, all the way down his spine to put the tumour pieces to sleep - hopefully they will sleep for 10-15 years, but only time will tell. 

Sam's tumour contains glioma cells which causes brain tumours and we remain lucky that, at the moment, the tumour pieces have not moved upwards to Sam's brain. 

Nerve tumours are very rare, and whilst they are mostly benign they can cause seizures, co-ordination issues as well as balance issues etc. They can also affect the function of other organs and glands in the body, such as the thyroid and the kidneys. Sam will continue to have regular scans for the rest of his life to monitor the movement and any growth of the existing tumour pieces, and to see if any more tumour pieces have started to appear. 

It's such a rare disease and so it needs as many funds as possible to continue to provide advice and research into nerve tumours." Tracy

 

Want your marathon motivation story to be added here? Contact our fundraising team on 020 8439 1234 or email fundraising@nervetumours.org.uk

Masterclasses in NF: Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

Prof. Dr. Berthold Pemp

OT Sabine Koinig

Masterclasses in NF: Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

Assoc. Prof. Dr. Gregor Kasprian

Dr. Hector Salvador, MD

Masterclasses in NF: The Patients’ Perspective: A Masterclass on NF Care Held by NF Patients

Masterclasses in NF: Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

 

Michel Kalamarides MD

Masterclasses in NF: Management Of Plexiform Neurofibromatosis in NF1- Rianne Oosterbrink, Justus L Groen, Karine Lascelles

Masterclasses in NF1: 1.Management Of Plexiform Neurofibromatosis in NF1

Rianne Oosterbrink MD

Justus L Groen MD

Karine Lascelles MD

Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome

Prof. Dr. Katharina Wimmer, Medical University of Innsbruck

Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: Rare NF1-Associated Tumors in Adults

Eric Legius, MD, PhD, University Hospital Leuven

Prof. Ellen Denayer, University Hospital Leuven

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis

Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital

Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

Masterclasses in NF: Breast Cancer in NF1

Gareth Evans, MD, University of Manchester, UK

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis

David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

NF2 Working Together: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

Masterclasses in NF: Surgery in NF2

Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches

Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

Masterclasses in NF: NF1 Pediatric Management

Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond

Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

Masterclasses in NF: NF1 Orthopedic Manifestations

Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas

Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology

Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

‘Neurofibromatosis 1 in the 21st Century’

Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK