Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/TrusteePreviewPic_(4)_800_600_s_c1.png)
Celebrating Trustees Week
It's National Trustee Week: Meet the people who keep NTUK moving.
Read More![](https://nervetumours.org.uk/images/made/images/common/Joanna’s_(20)_800_600_s_c1.jpg)
Men’s Health Month
We're making sure that men with NF are prioritising their health, both in and out of the workplace.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_3458_800_600_s_c1.jpeg)
Irfan’s Story
Irfan discusses his NF journey, how he transformed uncertainty and isolation into community and understanding.
Read More![](https://nervetumours.org.uk/images/made/images/common/Kelly_1_info_day_800_600_s_c1.jpg)
Kelly’s Story
Find out how Kelly discovered her confidence after overcoming testing years at school and college.
Read More![](https://nervetumours.org.uk/images/made/images/common/WhatsApp_Image_2024-10-28_at_12.09.43_6f03a61f_800_600_s_c1.jpg)
Awareness Walks
Raise awareness with an organised walk within your community. We've put together some pointers to help you with planning.
Read More![](https://nervetumours.org.uk/images/made/images/common/WhatsApp_Image_2024-10-28_at_12.09.27_a9b0444d_800_600_s_c1.jpg)
Meena’s Awareness Raising Coastal Walk
NTUK trustee Prof. Meena Upadhyaya treks the Welsh coast to raise awareness of NF and rare diseases.
Read More![](https://nervetumours.org.uk/images/made/images/common/gareth-evans-Page-Preview-800-x-500-px_800_600_s_c1.png)
Breast Cancer in Neurofibromatosis Type 1
Professor Gareth Evans takes us through a summary of the current research around the links between NF1 and breast cancer
Read More![](https://nervetumours.org.uk/images/made/images/common/South_Face_of_Bromley_Palace_(02)_800_600_s_c1.jpg)
Bromley NF1 Info Day 2024
Join us for an insightful NF1 Information Day in Bromley on November 23, 2024. Expert talks, Q&A, and community connection.
Read More![](https://nervetumours.org.uk/images/made/images/common/Joanna_Elson_Story_Magazine_Issue_09_2_2022_1024x768_800_600_s_c1.jpg)
Joanna’s Story
Joanna updates us on her breast cancer diagnosis, and how she's going above and beyond in her fundraising and fitness.
Read More