Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/image0_(1)_800_600_s_c1.jpeg)
Andrea’s Story
Andrea shares her long journey for an NF diagnosis and why she wants her story out there.
Read More![](https://nervetumours.org.uk/images/made/images/common/Caroline_Advice_Newsletter_(6)_800_600_s_c1.png)
Advice for Students with NF1, NF2-Schwannomatosis, and Schwannomotosis
Expert advice, information and resources to help you get the most from university.
Read More![](https://nervetumours.org.uk/images/made/images/common/Ella_Image_(2)_800_600_s_c1.jpg)
Ella’s Story
Ella shares her insights into campus life with NF, her victories and hurdles and the importance of self belief.
Read More![](https://nervetumours.org.uk/images/made/images/common/image7_(1)_800_600_s_c1.jpeg)
Georgia’s Story
Georgia shares her her story of self celebration, the importance of difference and how perseverance is key.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_8285_(1)_800_600_s_c1.jpg)
Nottingham INFormation Day a Big Thank You
Photos, feedback and more from the Nerve Tumours UK INFormation day in Nottingham.
Read More![](https://nervetumours.org.uk/images/made/images/common/Quality_of_Life_Surveywebnews_800_600_s_c1.png)
Quality of Life Survey
If you're living with NF, or a part of someone's network of support; we need your feedback.
Read More![](https://nervetumours.org.uk/images/made/images/common/Website_Header_800_600_s_c1.png)
Advice: Travelling With NF
Learn how to navigate travel with NF confidently. Essential tips and resources for smooth, stress-free journeys by train, pla
Read More![](https://nervetumours.org.uk/images/made/images/common/NF1CNC_Post124312_800_600_s_c1.png)
Join the NF1 Cutaneous Neurofibroma Consortium Project
Join a groundbreaking NF1 study to help develop better treatments for neurofibromas. Open to adults with a clinical/genetic N
Read More