Helpline 07939 046 030

Nerve Tumours UK joins the “Embracing Complexity” Coalition

10 October 2019

Nerve Tumours UK joins the "Embracing Complexity" Coalition

Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.

Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2. 

If you would like to find out more about the coalition then you can visit their website below:

The coalition was set up the charity Autistica a charity which aims at developing a brighter through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future. 

The coalition was set up the charity Autistica

Visit their website

Filter News

Filter by Date
Category
Reset

The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!

Check out our film & view the results from the film festival here:

Read More

Noah’s Inspirational Fundraising Story

Noah Herniman, 14, raises over 1,000 Easter eggs for charity

Read More

“Going dry in January” for NF

Janet Holloway and Val Goeghegan complete dry January for Nerve Tumours UK

Read More

Runderpants Winchester 2020

Winchester Student Union RAG are taking on the Runderpants Mile, our unique fun run in your undies!

Read More

A Magical Weekend

Blackpool Magic Convention 2020 supports Nerve Tumours UK this year as it's chosen charity

Read More

New Research Study for Children and Young People with Neurofibromatosis Type 1

Find out more about the study and how you can participate here:

Read More

The Littlewood’s Wedding Show for NTUK

Find out more about the amazing fundraiser here:

Read More

Becky’s Story

From dealing with her family's NF1 to improving her fitness and running marathons, have a read of Becky's amazing story here:

Read More

Beth’s “Novaspers Online Dog Show”

Find out more about Beth's online dog show here:

Read More