Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website
Filter News

Laura’s NF1 Awareness Story
Laura shares her NF1 story and tells us how she is raising awareness for World NF Awareness Month
Read More_1_800_600_s_c1.jpg)
Living with Neurofibromatosis Type 1: A Journey of Resilience, Transformation, and Impact
Our new charity ambassador, Amit Ghose, shares his inspirational story.
Read More_1_800_600_s_c1.jpg)
NF2 Quality of Life Questionnaire
The Massachusetts General Hospital NF research team would like your help to test a new quality of life questionnaire
Read More_3_800_600_s_c1.jpg)
Running for a Cure: Laura and Gonzalo Take on Half Marathons for NF1
Laura and Gonzalo; founders of CureAge Therapeutics, lace up for NF awareness.
Read More
Diet, fatigue and NF1
Take part in this research study which will explore the connection between diet, fatigue and NF1 in children and young adults
Read More
Our Ambassadors
NTUK is delighted to introduce you to our three new ambassadors, Emily Owen, Georgia Baum & Amit Ghose.
Read More
London Marathon 2025 Team NTUK
Congratulations and a big THANK YOU to Team NTUK for their superb efforts
Read MoreIan’s Story
Read Ian's story and why he's going the extra mile for NF awareness and his daughter Emily
Read More
London Marathon 2025
Meet our 2025 London Marathon fundraisers—each running to support those affected by NF. Read & share their stories.
Read More