Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their websiteFilter News
Breast Cancer in Neurofibromatosis Type 1
Professor Gareth Evans takes us through a summary of the current research around the links between NF1 and breast cancer
Read MoreBromley NF1 Info Day 2024
Join us for an insightful NF1 Information Day in Bromley on November 23, 2024. Expert talks, Q&A, and community connection.
Read MoreJoanna’s Story
Joanna updates us on her breast cancer diagnosis, and how she's going above and beyond in her fundraising and fitness.
Read MoreAndrea’s Story
Andrea shares her long journey for an NF diagnosis and why she wants her story out there.
Read MoreAdvice for Students with NF1, NF2-Schwannomatosis, and Schwannomotosis
Expert advice, information and resources to help you get the most from university.
Read MoreElla’s Story
Ella shares her insights into campus life with NF, her victories and hurdles and the importance of self belief.
Read MoreGeorgia’s Story
Georgia shares her her story of self celebration, the importance of difference and how perseverance is key.
Read MoreNottingham INFormation Day a Big Thank You
Photos, feedback and more from the Nerve Tumours UK INFormation day in Nottingham.
Read More