Helpline 07939 046 030

Nerve Tumours UK joins the “Embracing Complexity” Coalition

10 October 2019

Nerve Tumours UK joins the "Embracing Complexity" Coalition

Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.

Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2. 

If you would like to find out more about the coalition then you can visit their website below:

The coalition was set up the charity Autistica a charity which aims at developing a brighter through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future. 

The coalition was set up the charity Autistica

Visit their website

Filter News

Filter by Date
Category
Reset

Esme’s Summer of Slides

Join Esme this summer and slide down as many slides as you can for NTUK!

Read More

Christian’s Story

Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!

Read More

Tate’s Shine A Light Marathon

Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him

Read More

A Colourful 5K Challenge

Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.

Read More

Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!

Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!

Read More

Nerve Tumours UK takes part in the Genomics Showcase

Find out how you can take part in the Genomics showcase – sign up for free!

Read More

Kate “NF1 Mummy” Your Questions on parenting answered:  World Neurofibromatosis Day 17 May 2021

Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day

Read More

Jo’s 160 Mile walk for NTUK!

Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.

Read More

NF2 & Identity Research Study

If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2

Read More