Helpline 07939 046 030

Nerve Tumours UK joins the “Embracing Complexity” Coalition

10 October 2019

Nerve Tumours UK joins the "Embracing Complexity" Coalition

Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.

Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2. 

If you would like to find out more about the coalition then you can visit their website below:

The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future. 

The coalition was set up the charity Autistica

Visit their website

Filter News

Filter by Date
Category
Reset

Noreen’s story

Read Noreen's incredibly honest & moving blog about living with NF1

Read More

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Rare Disease Day 2022

Nerve Tumours UK joins events showcasing Rare Disease Day, hosted by the Genetic Alliance, on 28 February 2022

Read More

Runderpants Winchester 2022

The Runderpants fun run makes a successful return to Winchester

Read More

NF1 Research study with fly model

How can studying the brain of a fruit fly help with understanding of NF1?

Read More

Stuart’s Schwannoma Story Part Two

Stuart's update takes us through the operation to remove the Schwannoma, recovery and getting back to marathon training.

Read More

Sian & Connor’s story

Sian & Connor describe the invaluable support from NTUK during her pregnancy with baby Reuben

Read More

Anita, aka Fat Lady Slim, is running the London Marathon for NTUK

Anita is fundraising on behalf of niece Sophie & great-niece Lexie who have NF2 by running the London Marathon

Read More

Pat’s Triathlon Challenge

Pat is taking on a 3 day triathlon style challenge to raise awareness & funds for Neurofibromatosis research & support

Read More