Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website
Filter News
Evie’s NF1 story
Evie's mam Emily & brother Riley are doing 5k/day during May, after Evie was diagnosed with NF1 at the age of three.
Read More
Sacred Heart Chorus and Orchestra Summer Concert
Sacred Heart Chorus and Orchestra are supporting the charity with a concert at Sacred Heart Church Wimbledon
Read More
Team NTUK London Marathon 2026
Congratulations and thank you to Team NTUK for their epic efforts!
Read More
Living with Neurofibromatosis Type 1: A Journey of Resilience, Transformation, and Impact
Our charity ambassador, Amit Ghose, shares his inspirational story.
Read More
London Marathon Motivation 2026
Find out why our Team NTUK runners are taking on the 2026 London Marathon.
Read More
Rare Disease Day 2026: Equity for Rare
A look back on Rare Disease Day: Equity for Rare, 28 February 2026.
Read More
Melanie’s Ironman challenge
Melanie reflects on her journey to complete Ironman Copenhagen, in memory of her cousin Ben who had NF1
Read More
Fyling Fest Fundraiser
Fyling Fest 2025: Sunshine, music & a whole lot of heart in the Rose Garden - all in support of Bea
Read More