Helpline 07939 046 030

Nerve Tumours UK joins the “Embracing Complexity” Coalition

10 October 2019

Nerve Tumours UK joins the "Embracing Complexity" Coalition

Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.

Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2. 

If you would like to find out more about the coalition then you can visit their website below:

The coalition was set up the charity Autistica a charity which aims at developing a brighter through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future. 

The coalition was set up the charity Autistica

Visit their website

Filter News

Filter by Date
Category
Reset

Study - Resilient Youth with NF

Online Harvard Study for 12-17 year olds

Read More

Owen’s Ball 2021

The Owen Family held their annual black tie fundraiser for NTUK

Read More

Graham’s Super Nine Shines A Light on NF

Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK

Read More

Alice’s NF2 study project

Alice describes her NF2 study project as part of her Genetic and Genomic Counselling MSc

Read More

Meet Siobhan, our new Specialist Advisor for Northern Ireland

Meet Siobhan from Northern Ireland, our newest Specialist Advisor

Read More

Poppy’s NF1 story

Poppy describes growing up with NF1 and fundraising for future research & treatment

Read More

Meeting Alpha FX

NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community

Read More

Nerve Tumours UK joins the Neurological Alliance

A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.

Read More

Nerve Tumours UK Conference 2021

The first meeting since 2019 with our Specialist NF Advisors & Nurses, Head Office & Members of the Board of Trustees

Read More