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Corporate Fundraising 2024

05 January 2024

Corporate fundraising can take many forms, whether you are a local home-based business, a big corporation or even in the entertainment industry. Whether it is employee involvement organising team-building & fundraising activities; adopting us as Charity of the Year; sponsorship or gifts in kind, there are many different ways in which your company could support Nerve Tumours UK.

We work closely with all our partners to ensure they receive a good return on their investment. Our Head Office team are happy to meet you and give a presentation, highlighting the benefits and value of the partnership.

Topek Southern Limited chose Nerve Tumours UK as their joint charity partner for 2023

The TSL team are endeavouring to raise awareness of NF1, whilst at the same time raising funds for Nerve Tumours UK, which will be used to support the regional services in Hampshire, Wiltshire, Dorset and the Isle of Wight.

NTUK Specialist NF Nurse, Tracey, is supporting Technical Director Dan, his wife Rachel, and their daughter Evie, who was diagnosed with NF1.

The company kickstarted their fundraising campaign on May 15, ahead of World Neurofibromatosis Awareness Day, with an internal launch, at which they invited Tracey to join them. Tracey informed the team about NF1 and how NTUK’s work supports people living with NF and their families. They were joined by Dan’s wife, Rachel, and the guest of honour, Evie.

The team had a series of events planned, to support their mission, including running the Yorkshire Marathon. They had already completed a few of their listed challenge events, including the Great South Run, Three Peaks Challenge and RideLondon-Essex 100 mile cycle ride.

Find out more about TSL's support for Nerve Tumours UK, and also how we are supporting Evie and her family:

Charity of the Year

Follow in the foodsteps of these corporations and ask your employer to make us your Charity of the Year 

Newcastle based corporate finance boutique, WilliamsAli, has announced its latest charity of the year, Nerve Tumours UK

The cause is one that is close to those at WilliamsAli as Associate Director, Mo Miah’s one year old daughter, has recently been diagnosed with the condition. 

Mo added “I am over the moon with this decision. The diagnosis for our daughter has impacted greatly on our family and we have already been supported by the charity so it feels right to be giving back”

The team at WilliamsAli started their fundraising efforts by holding a Ryder Cup style golf day in September. A variety of challenges are planned throughout the year.

"At WilliamsAli we pride ourselves on our family values so when Mo suggested Nerve Tumours UK as our next charity of the year, there was no decision to be made. Mo is a big part of our team and we will do everything we can to support him and his family"

– Abu Ali, Managing Director

Veramed

Clinical research organisation: motivated by the knowledge that they are helping others and actively strive to do ‘Better Business’

"Supporting Nerve Tumours UK is a really important part of that. We don’t just want to give one-off donations, we’re really keen to develop relationships, working with charities to make real change in any way we can."

– Veramed

Alpha FX

Delivering financial solutions, choosing to be honest about where their value lies and ensuring they make an impact

"We’re supporting Nerve Tumours UK as a member of the team, Danni, who works as Head of Settlements, has a personal connection to the charity. Her nephew has Neurofibromatosis. We’re a small business ourselves and understand the importance of supporting smaller charities, as they can often be overlooked in favour of larger organisations. As a close-knit team, a cause personally important to one member, is important to the whole team."

– Alpha FX

Corporate Charity Day & Team Building

Langmead fundraising day for NTUK

Sarah works on finance system projects for Langmead, a food business. Her daughter Hannah has NF1.

In order to raise awareness, Sarah nominated Nerve Tumours UK as a charity for Langmead's corporate fundraising day and was then responsible for co-ordinating the day's activities.

Read more about how she achieved this:

Corporate Giving - Support us with promotional events or product marketing

At RBH we dare to care – about our work, about each other, and about the world at large.

#24actsofkindness

Last Christmas we turned the billboard outside our offices into a giant advent calendar, with a festive good deed hidden behind each door. One of which was a contribution to Nerve Tumours UK, whose work we have been supporting as their creative communications partner. We have called our Christmas campaign #24ActsOfKindness, and it was promoted day by day on our social channels and website: https://rbh.co.uk/

"We are proud to support the growth and development of Nerve Tumours UK’s network in any way we can, because we think the brilliant job they do deserves far greater exposure."

– Debra Hepburn, Founding Partner, RBH

Shipley UK ran a monthly Wheel of Giving

Our Wheel of Giving initiative continued through 2023 where our team selects a charity or community group of their choice to receive the financial donation each month.

Special Events

Leanne & Wayne Littlewood have supported Nerve Tumours UK over many years, fundraising through events and London Marathon challenges, as their son Harley has NF1.

They run their own wedding fayre business. Read on to find out how a special promotion at an exhibition created extra footfall, and at the same time, succeeded in raising vital funds and awareness of Neurofibromatosis:

Raise Awareness with a Nerve Tumours UK stand at your event

Mike has NF1 and a love of magic.

"I have been interested in magic since I was very young. I had found a decent magic club, the Manchester Circle of Magicians near me, but then got involved with the Blackpool Magicians Club.

Every February, it hosts the Blackpool Magicians Convention, which according to Guinness World Records is the world’s largest magic convention

and has a featured charity every year, and I was able to persuade the Club to make Nerve Tumours UK the choice for this year.

"What was important to me about featuring Nerve Tumours UK at the Convention was not just the chance to raise funds (though that is greatly needed) but also to raise awareness about NF. "

– Mike

The above ideas were developed collectively, and may give you some inspiration.

 If you have any questions or would like to know more, please call our Fundraising Team on 0208 439 1234 or drop us an email fundraising@nervetumours.org.uk 

Consider nominating Nerve Tumours UK for 2024

Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome

Prof. Dr. Katharina Wimmer, Medical University of Innsbruck

Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: Rare NF1-Associated Tumors in Adults

Eric Legius, MD, PhD, University Hospital Leuven

Prof. Ellen Denayer, University Hospital Leuven

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis

Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital

Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

Masterclasses in NF: Breast Cancer in NF1

Gareth Evans, MD, University of Manchester, UK

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis

David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

NF2 Working Together: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

Masterclasses in NF: Surgery in NF2

Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches

Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

Masterclasses in NF: NF1 Pediatric Management

Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond - Amedeo Azizi

Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond

Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

Masterclasses in NF: NF1 Orthopedic Manifestations

Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas

Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology

Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

‘Neurofibromatosis 1 in the 21st Century’

Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022

Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK