Latest News
and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN). We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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Sam’s Marathon
Sam, our Specialist NF Nurse for Merseyside & the North West, is running the London Marathon - her very first Marathon!
Read MoreNF Patients Community Day
The NF Patients Community Day is on Sunday 9th October 2022 - register to attend virtually
Read MoreAppearance, Identity & Law workshop
Appearance, identity & law workshop at Queen Mary University London School of Law
Read MoreAlfred the Pirate
Seven year old Alfred the Pirate takes NF1 in his stride, and is supported by Specialist NF Nurse Mel
Read MoreNicole’s NF1 story & skydive
Nicole shares her NF1 journey and her motivation to inspire children with disabilities to achieve whatever they want to do
Read MoreSarah’s NF1 story & Langmead fundraising
Sarah describes her daughter Hannah's NF1 journey and organising a corporate charity day fundraiser at Langmead Herbs
Read MoreMolly & Alfie
Mollie has NF1 - her big brother Alfie & friend Kaelan are running to raise awareness & funds for NTUK
Read MoreStudy - Resilient Youth with NF
Adolescents with NF (12-17 years old) are wanted for an Online Harvard research project
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved