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Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN). We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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RAISING THE ROOF COMEDY NIGHT
First night on the NTUK 40 years Comedy Circuit 2022 at London's Backyard Comedy Club
Read MoreChloe’s NF1 story
Chloe gives an honest assessment about coming to terms with having NF1 and how it has made her determined & strong
Read More“Happy Easter”
A message from Karen, our Charity Director, wishing you a very Happy Easter!
Read MoreLisa helps Shine a Light on Neurofibromatosis in Belfast
Lisa has NF1, & lobbied the Belfast Lord Mayor to get Belfast City Hall lit up blue on Neurofibromatosis Day, 17th May
Read MoreAlex’s NF1 story
Alex describes her life with NF1, growing up in care, doing adaptive boxing & gym classes & getting NCFE Care qualifications
Read MoreSumeeth’s Schwannoma story
Sumeeth, thought nothing of a muscle twitch after a hangover - it was the first symptom that led to a Schwannoma diagnosis
Read MoreLaura’s NF1 story
Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1
Read MoreDisfigurement equality at work - research
This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements
Read MoreRAISING THE ROOF: CHARITY COMEDY NIGHT IN AID OF NERVE TUMOURS UK
Join us in London on our first comedy night to celebrate 40 years of Nerve Tumours UK
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved