Latest News
and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN). We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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NF1 stem cell research study
Julieta is carrying out stem cell research to understand brain development in those with NF1
Read MoreAva-Lily’s NF1 story
Ava-Lily is thriving at school despite various NF1 related difficulties - read her story
Read MoreWestminster Virtual Rare Disease Day 2022 Reception
NTUK joined the annual international event aimed at raising awareness & highlighting the needs of people with rare diseases
Read MoreRare Disease Day 2022
Nerve Tumours UK joins events showcasing Rare Disease Day, hosted by the Genetic Alliance, on 28 February 2022
Read MoreRunderpants Winchester 2022
The Runderpants fun run makes a successful return to Winchester
Read MoreNF1 Research study with fly model
How can studying the brain of a fruit fly help with understanding of NF1?
Read MoreStuart’s Schwannoma Story Part Two
Stuart's update takes us through the operation to remove the Schwannoma, recovery and getting back to marathon training.
Read MoreSian & Connor’s story
Sian & Connor describe the invaluable support from NTUK during her pregnancy with baby Reuben
Read MoreAnita, aka Fat Lady Slim, is running the London Marathon for NTUK
Anita is fundraising on behalf of niece Sophie & great-niece Lexie who have NF2 by running the London Marathon
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved