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Welcome to our Nerve Centre
Keep up with the latest news and views from Nerve Tumours UK and across the NF community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We, at Nerve Tumours UK, are in the process of updating our medical publications and resources, in print and digital, to reflect the new names where relevant. This will however, not be reflected in our news section and other non-medical publications digital and print.
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NF2 Day 2024 by Emily Owen
A reflective poem for World NF2 Day, to celebrate people living with NF2
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Connor’s NF2 story
Connor's mum Tracy's maternal instincts proved invaluable when fighting to get Connor's symptoms investigated
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Jo’s Shine A Light Family Fun Day
The family fundraiser was supported by Dr Shruti Garg, member of the Nerve Tumours UK Medical Advisory Board
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Erin’s 24 hour charity live stream
Erin has NF1 and is raising awareness with a 24 hour live charity stream to Shine A Light on NF
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Tate’s Shine A Light Bikeathon
Tate's 4th NTUK fundraiser was a Shine A Light Bikeathon, having learnt to cycle in just 3 weeks!
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Access to your GP
We want to hear from you… Help us improve services by completing a quick survey
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London Marathon 2024 Team NTUK
Thank you and congratulations to Team NTUK for their marathon effort
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Thomas’ NF1 story
Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife
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Meet Jessica, new Specialist NF Nurse
Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the NF community.
See how you can get involved