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Welcome to our Nerve Centre
Keep up with the latest news and views from Nerve Tumours UK and across the NF community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We, at Nerve Tumours UK, are in the process of updating our medical publications and resources, in print and digital, to reflect the new names where relevant. This will however, not be reflected in our news section and other non-medical publications digital and print.
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Corporate Fundraising 2024
Find out some of the different ways your company can support Nerve Tumours UK
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Matthew’s story
Matthew, who has NF2 and is a dedicated Scout, has been awarded the prestigious Cornwell Scout Badge
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Ella’s editorial
Have a read of Ella's editorial as she shares her brave journey against NF1 with us!
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Connected Recovery - Tackling Loneliness
A report from the All-Party Parliamentary Group (APPG) on Tackling Loneliness and Connected Communities
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Christmas Message from the Nerve Tumours UK team
Thank you from all of us at Nerve Tumours UK
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Specialist NF Nurses/ Advisors’ Conference 2023
Find out more about this year's meeting with our Nurses
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National NF2 Meeting 2023
A report from the 2023 England NF2 meeting, with healthcare professionals & charities working together for the NF2 community
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Avastin Side Effects
Jo has collated shared personal experiences, with medical and general advice on Bevacizumab (brand name Avastin)
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David’s Story - Community and Acceptance
David contacted NTUK after seeing our advertising campaign at King's Cross Station in London last year. Read his story:
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the NF community.
See how you can get involved