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Welcome to our Nerve Centre

Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community. 

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Hour of Power – Love Yourself Valentine’s Day workout for NF

Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!

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Rare Disease Day 2021 and Rare Reach Festival

Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!

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NF Said

Daisy takes on a 38-mile running challenge for her sister Millie, 1 mile a day for every person diagnosed with NF2 a year

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Love Yourself - Hour of Power in Support of the NF community

Get your sweat on and spread the love this Valentine's day for our NF community!

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Pat’s NF Fundraiser Walk

Read all about Patrick's incredible fundraising efforts to help others affected by NF!

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Laura’s Marathon effort!

Laura beats our 26.5 mile challenge and takes it to the next level - matching miles with donations, find out what she's up to

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Research call: Does neurofibromatosis affect how you feel about your body?

Find out how you can improve self-help methods for people living with neurofibromatosis

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Stitched up by Celia

Get inspired by Celia's creative online haberdashery shop for Nerve Tumours UK!

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NF1 with Plexiform Neurofibromas Study: information for patients and carers

Find out how you can help shape the future of NF1 healthcare

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We are funded 100% by voluntary donations

So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.

See how you can get involved