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If you have NF, we're here to help you.
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Find out moreWorking for the nerve tumours community
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have the medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We’re here to improve lives for people with NF, by making sure they have access to the help they require.
Our Helpline is open on Monday, Wednesday & Friday from 9am to 5pm on 07939 046030.
On the other days of the week, the head office team can be contacted from 9am to 5pm on 0208 439 1234.
Outside of these hours, and if you think it is an emergency, please contact your GP, or go to your nearest A&E Department.
For further information on anything to do with NF, please visit our Help Section.
Kieran's Story
“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”
Read moreEmily's Story
Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from NF2-related Schwannomatosis (NF2)…
Read moreLatest News
Breast Cancer and NF1: A clinical perspective
Professor Gareth Evans takes us through a summary of the current research around the links between NF1 and breast cancer
Read MoreBromley NF1 Info Day 2024
Join us for an insightful NF1 Information Day in Bromley on November 23, 2024. Expert talks, Q&A, and community connection.
Read MoreJoanna’s Story
Joanna updates us on her breast cancer diagnosis, and how she's going above and beyond in her fundraising and fitness.
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So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved