18 May 2020
May 17 is World NF Awareness Day. The world may be struck by the Covid 19 crisis, but yesterday we had 83 iconic buildings and landmarks across the UK yet again shining a light on Neurofibromatosis in support of those affected by nerve tumours. This year we have asked the buildings to send us photos directly as you could not go out amidst current restrictions yourself.
Additionally we are very grateful for your photos of your homes and gardens lighting up in blue on World NF day raising awareness for the 26,500 affected in the UK alone. Globally 170 buildings lit up on the day, down from over 300 from last year, but the UK counted for nearly half of the total! We all stand together across borders to raise awareness for Neurofibromatosis.
We would like to give a massive thank you to every building and landmark on the list above that helped make this year's Shine A Light such a success.
Beacon of Light
Worcester University Arena
Herne Bay Clock Tower
Steve Prescott Bridge
Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life
Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!Read More