Shine a Light 2020 Success!
18 May 2020
May 17 is World NF Awareness Day. The world may be struck by the Covid 19 crisis, but yesterday we had 83 iconic buildings and landmarks across the UK yet again shining a light on Neurofibromatosis in support of those affected by nerve tumours. This year we have asked the buildings to send us photos directly as you could not go out amidst current restrictions yourself.
Additionally we are very grateful for your photos of your homes and gardens lighting up in blue on World NF day raising awareness for the 26,500 affected in the UK alone. Globally 170 buildings lit up on the day, down from over 300 from last year, but the UK counted for nearly half of the total! We all stand together across borders to raise awareness for Neurofibromatosis.
All buildings/landmarks that helped "Shine A Light On Neurofibromatosis" this year
We would like to give a massive thank you to every building and landmark on the list above that helped make this year's Shine A Light such a success.
BFI Imax
National Theatre
Penshaw Monument
Beacon of Light
Carolyn Garden
Enniskillen Castle
O2 Guidllhall
Chloe Garden
Worcester University Arena
Herne Bay Clock Tower
Rosalie Wimbledon
Friary Centre
Ursula
Salesforce Tower
Steve Prescott Bridge
Jane
Filter News
Luke’s Story
Luke had NF1 since childhood. Now an adult, surgery last year has enabled him to play football and do whatever he wants
Read MoreCharlotte’s Story
When Charlotte was 6, she was diagnosed with NF1, along with her brother & dad. Now she is on a mission to raise awareness
Read MoreEden P for healthcare professionals
Healthcare professionals, who provide support to expectant parents with NF1 are invited to take part in the Eden P study
Read MoreNicole’s story
Nicole has NF2, she describes the preparations and the absolute joyful experience of the birth of her son Lewis
Read MoreCAR Research - exploring family planning decisions
Research Advisors required to help explore what influences decisions about having children and what support would be helpful
Read MoreCorporate Fundraising 2024
Find out some of the different ways your company can support Nerve Tumours UK
Read MoreMatthew’s story
Matthew, who has NF2 and is a dedicated Scout, has been awarded the prestigious Cornwell Scout Badge
Read MoreElla’s editorial
Have a read of Ella's editorial as she shares her brave journey against NF1 with us!
Read MoreConnected Recovery - Tackling Loneliness
A report from the All-Party Parliamentary Group (APPG) on Tackling Loneliness and Connected Communities
Read More