Nerve Tumours UK Virtual Coffee Mornings

NTUK Virtual Coffee Morning 

Join NTUK’s Charity Director, Karen Cockburn
and other members of the NTUK team in our Virtual Coffee Mornings.

"I would like to thank all those who attended the meet last Wednesday, some faces were familiar and some new. I found it a very useful session and have taken some action points away. I hope you all found it as useful, but please let me know your thoughts, so that we can tinker with the format for future meets. I would also like to thank Carolyn, our Helpline Specialist NF Nurse, who joined as well and I look forward to meeting many more of you over the course of the year, so please look out for the date & time of our next coffee morning."

Karen Cockburn, Charity Director, after the previous virtual coffee morning, September 2025

The next Virtual Coffee Morning will be taking place on Wednesday 1 July at 12pm, focusing on NF2.

Register your place here

After we have hosted our regional information days around the UK, we often receive letters or emails from attendees saying how grateful they were, not just for the medical information, but to meet fellow members of the community, and in many cases we hear that new friendships have been forged. Being able to chat openly to a friend, is so important for all of us. But not everyone can get out and about, or travel to these events, so we thought it was about time that we brought an event directly to your armchairs.

Pre-Christmas, we had reached out to the NF Community to ask what you thought about our services, how we could improve upon them and if there was more that we should be doing. We understand that not everyone wants to take part in a survey and, although we were delighted with the number of responses we received, we felt we needed to hear more.

We want everyone to have their say and so we thought we would reach out to the furthest corners of our community by running a series of virtual coffee mornings over the next year, commencing in May. These virtual coffee mornings will enable everyone to feel heard and connected no matter the barrier, bringing our community closer together, helping us to raise awareness of what we do, all whilst ensuring everyone can participate from a space they feel comfortable.

Your participation will also help us build a better understanding of the ongoing issues faced in the NF Community, improving our services and best practice. We want people to feel at ease to engage in an open and honest two-way discussion, by creating a space where everyone has the chance to be heard and for that very reason, we've decided it's best to limit attendance to 22 attendees, per coffee morning. We have also decided to host this at 12 noon, in case anyone is at work and wishes to join over their lunch break.

Our next virtual coffee morning will be held on 1st July, focusing on NF2, so if you'd like to get involved, click on the link below to register your interest.

Karen will be joined by Carolyn Smyth, Specialist NF Nurse who operates our helpline, and Juliette Buttimore, NTUK Medical Advisory Board Member and NF2 & Skull Base Nurse Consultant at Cambridge University Hospitals NHS Foundation Trust on this occasion. Obviously it will not be an event for specific medical questions to be raised, you can do that in private by calling or emailing Carolyn on her helpline days. However general questions can be raised.

We very much look forward to meeting you all on the 1st.