Research call: Does neurofibromatosis affect how you feel about your body?
28 January 2021
Kate Adkins is a researcher and Trainee Clinical Psychologist based at the University of Sheffield. As part of her doctoral research, she is interested in improving self-help interventions for people living with neurofibromatosis and dermatological conditions.
If neurofibromatosis affects how you feel about your body, please consider helping psychologists test a 1-week online writing intervention. By taking part you will be helping us learn whether the intervention could help improve body image for other individuals living with a range of dermatological conditions and be in with a chance to win a £50 voucher of your choice.
Who can take part?
Anyone:
- Age 18 or over.
- Living with a condition that affects the skin (e.g. neurofibromatosis).
- Who feels their condition negatively impacts how they feel about their body.
- Able to read and write in English.
What will it involve?
You will be asked to complete three 15-minute online writing tasks over the course of a week. You will also be asked to complete several questionnaires before the first writing task, after the final writing task and one month later. As this is a randomised controlled trial, you will be randomly assigned to either: (1) the writing intervention or (2) a control writing task. If you are allocated to the control tasks, you will have access to the intervention material at the end of the study.
Please follow the link below to find out more.
Please contact Dr Kate Adkins (Trainee Clinical Psychologist, University of Sheffield) via k.adkins@sheffield.ac.uk for further information.
Filter News
Lilly’s Story: Growing Up With NF1
In 2019, Lilly and her family featured in our ‘Shine a Light on Neurofibromatosis’ short film. Find out how she's getting on.
Read More
Improving the delivery of Genetic Results Survey
Survey: How did you receive your genetic results? Could we do it better?
Read More
Sonny’s NF1 story
Sonny, 3 years old, faces daily challenges but shows incredible strength, determination, and resilience. Read his story.
Read More
Great North Run 2026
Read more about this iconic half-marathon, and find out how to apply for 2027.
Read More
Manchester University NF1 MEK Inhibitors Research
Research: NF1 MEK Inhibitors and Learning
Read More
Toad Hall Nursery Fundraising Day
Toad Hall Nursery's annual fundraising day supported Nerve Tumours UK as 3 year old Lily has NF1.
Read More
Glasgow 2026 Everybody is born a Champion
This campaign features GB Para-Sprinter Thomas Young MBE, NTUK Patron, competing in the 2026 Commonwealth Games in Glasgow
Read More