RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Runderpants-2019Page-Preview-800-x-500-px_800_600_s_c1.png)
Runderpants Bangor 2019
Have a read about the unqiue but extremely successful event that was Runderpants Bangor 2019
Read More![](https://nervetumours.org.uk/images/made/images/common/FEI-USEPage-Preview-800-x-500-px_800_600_s_c1.png)
Nerve Tumours UK joins up with Face Equality International’s Alliance
We have joined Face Equality International Alliance in an attempt to end discrimination to those with facial differences
Read More![](https://nervetumours.org.uk/images/made/images/common/Bronte-website-headerPage-Preview-800-x-500-px_800_600_s_c1.png)
Bronte’s Story
Have a read of Bronte's story about how she continues to enjoy living her incredibly adventorous and ambitous life
Read More![](https://nervetumours.org.uk/images/made/images/common/BristolPage-Preview-800-x-500-px_800_600_s_c1.png)
Bristol NF1 Information Day 23/03/2019
The day is designed so that our specialists can give you information and insight about NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/adam-buxton-comedy-night-Page-Preview-800-x-500-px_800_600_s_c1.png)
Adam Buxton Comedy Night in aid of Nerve Tumours UK
Our charity comedy night was certainly nothing short of a success. Find out exactly what went down here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Megan-Crews--meet-meganPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Megan
Megan Crews is a 30 year-old special needs tutor in Salisbury. She recently spoke out in The Sun.
Read More![](https://nervetumours.org.uk/images/made/images/common/Fabio-researchPage-Preview-800-x-500-px_800_600_s_c1.png)
How does your visible difference affect you?
Researchers would love to understand your experience of how a visible difference affects your daily life
Read More![](https://nervetumours.org.uk/images/made/images/common/GABYPage-Preview-800-x-500-px_800_600_s_c1.png)
Gabriella’s Story
"I believe everyone should think the same and be kind to people however they look and whatever condition they have."
Read More