RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
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![](https://nervetumours.org.uk/images/made/images/common/PoppyPage-Preview-800-x-500-px_800_600_s_c1.png)
Polly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
Read More![](https://nervetumours.org.uk/images/made/images/common/eden-baby_800_600_s_c1.jpg)
EDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
Read More![](https://nervetumours.org.uk/images/made/images/common/EllaPage-Preview-800-x-500-px_800_600_s_c1.png)
Ella’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
Read More![](https://nervetumours.org.uk/images/made/images/common/Grace-colourPage-Preview-800-x-500-px_800_600_s_c1.png)
Grace’s Story
Have a read of Grace's story and she overcame her insecurites surrounding her NF
Read More![](https://nervetumours.org.uk/images/made/images/common/Helpful_Charities_800x500_preview_800_600_s_c1.jpg)
Helpful Charities
Find some of the other helpful charities that may be able to support you here
Read More![](https://nervetumours.org.uk/images/made/images/common/Harvey-Page-Preview-800-x-500-px_800_600_s_c1.png)
Sophia and Harvey’s story
"Despite all that, Harvie is a happy little boy who enjoys nursery and loves his favourite things"
Read More![](https://nervetumours.org.uk/images/made/images/common/Lucys-StoryPage-Preview-800-x-500-px_800_600_s_c1.png)
Lucy’s Story
"I love him, and I couldn't be without him, regardless of whether he was sick or healthy."
Read More![](https://nervetumours.org.uk/images/made/images/common/JayceePage-Preview-800-x-500-px_800_600_s_c1.png)
Jaycee’s Story
Have a read of Jaycee's incredible story and how she has overcome some major difficulties in her life.
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