RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Pear-KellyPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Pearl
Pearl Kelly is 22, and has multiple complex problems caused by her NF1. Here she explains her outlook on life
Read More![](https://nervetumours.org.uk/images/made/images/common/JoannaPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Joanna
Joanna is a lecturer in Mitochondrial Genetics at Newcastle University, she recently ran the London Marathon. Meet her here
Read More![](https://nervetumours.org.uk/images/made/images/common/Maia-Thornton-ResearchPage-Preview-800-x-500-px_800_600_s_c1.png)
New Research Into Appearance Altering Conditions
Maia Thornton PhD is looking for both parents and professionals who care for someone with an appearence altering condition
Read More![](https://nervetumours.org.uk/images/made/images/common/AdamPage-Preview-800-x-500-px_800_600_s_c1.png)
Adam’s Story
Adam has NF1 yet is still one of the most active and athletic people in the UK. Read about his fascinating story here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Littlewoods-charityPage-Preview-800-x-500-px_800_600_s_c1.png)
Littlewood’s Charity Night
Have a read of yet another successful charity night hosted by the Littlewoods
Read More![](https://nervetumours.org.uk/images/made/images/common/Emily-owenPage-Preview-800-x-500-px_800_600_s_c1.png)
Emily Owen Positive Role Model (Disability) Award Nomination
Vote for our tustee Emily Owen at this year's National Diversity Awards 2019.
Read More![](https://nervetumours.org.uk/images/made/images/common/gareth-evans-Page-Preview-800-x-500-px_800_600_s_c1.png)
Research Outlook with Prof Gareth Evans
Have a read on some of the latest research with Prof Gareth Evans
Read More![](https://nervetumours.org.uk/images/made/images/common/Ben-fundraiser-dinnerPage-Preview-800-x-500-px_800_600_s_c1.png)
ICAEW Worcestershire Annual Dinner and Ball Fundraiser for NTUK
The ICAEW Worcestershire Annual Dinner and Ball raised an incredible amount for us this year! Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/White-family-coverPage-Preview-800-x-500-px_800_600_s_c1.png)
We are Family London Marathon
Have a read of the remarkable journey the White family has undergone in support of their young daughter Gaby who has NF.
Read More