Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Siobhan_Harding-Lester_370x280_800_600_s_c1.jpg)
Meet Siobhan, our new Specialist Advisor for Northern Ireland
Meet Siobhan from Northern Ireland, our newest Specialist Advisor
Read More![](https://nervetumours.org.uk/images/made/images/common/Poppy_1_370x280_800_600_s_c1.jpg)
Poppy’s NF1 story
Poppy describes growing up with NF1 and fundraising for future research & treatment
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_4646_370x280_800_600_s_c1.jpg)
Meeting Alpha FX
NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community
Read More![](https://nervetumours.org.uk/images/made/images/common/NA_logo_370x280_800_600_s_c1.jpg)
Nerve Tumours UK joins the Neurological Alliance
A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_4791_370x280_800_600_s_c1.jpg)
Nerve Tumours UK Conference 2021
The first meeting since 2019 with our Specialist NF Advisors & Nurses, Head Office & Members of the Board of Trustees
Read More![](https://nervetumours.org.uk/images/made/images/common/Wing_Walk_Ailsa_photo_on_wing_waving_370x280_800_600_s_c1.jpg)
Tricia’s Wingwalk fundraiser
Tricia describes her wingwalk experience in celebration of her 75th birthday and in memory of her daughter Sarah, who had NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/834872_1052_00091_370x280_800_600_s_c1.jpg)
Stuart’s Schwannoma Story Part One
Stuart describes how certain symptoms led to a Schwannoma discovery
Read More![](https://nervetumours.org.uk/images/made/images/common/image1_370x280_800_600_s_c1.jpg)
Joy’s NF1 story
Joy describes living with NF1; her son's diagnosis and support at school; fundraising and shining a light on NF
Read More![](https://nervetumours.org.uk/images/made/images/common/1_Onno_Faber_at_a_meeting_this_summer_to_organize_his_hackathon_OF_370x280_800_600_s_c1.jpg)
A man on a mission: Onno Faber and his NF2 journey
Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE
Read More