Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News

Douglas Thomson’s NF1 Story
Douglas describes life with NF1 and how losing his leg was one of the best things to happen to him
Read More
Tricia’s Wingwalk and Birthday Fundraiser for Sarah and Keith
Tricia's fundraising wingwalk in memory of her daughter Sarah who had NF1, and to remember her father Keith
Read More
Student Voice Prize 2021
The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!
Read More
Centre for Appearance Research - Parent Support Materials Study
The Centre for Appearance Research is doing a study on parent support materials - can you help?
Read More
Centre for Appearance Research - YP Face IT
YP Face IT offers online support for young people with conditions or injuries affecting their appearance
Read More
Counselling support from Changing Faces
Changing Faces - Counselling support: confidential one to one support sessions for people with a visible difference
Read More
Nerve Tumours UK Community Survey
This consultation provided direct feedback to the strategy group, to look at how we can continue to provide our services
Read More
Suzi’s NF2 story
Suzi used her own NF2 diagnosis to inspire her research into how identity is experienced by people with NF2
Read More
Emma’s Story
Emma shares her journey with NF after finding out her daughter, Poppy, has been diagnosed with NF Type 1.
Read More