Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/comedians_cover_photo_370x280_800_600_s_c1.jpg)
RAISING THE ROOF COMEDY NIGHT
First night on the NTUK 40 years Comedy Circuit 2022 at London's Backyard Comedy Club
Read More![](https://nervetumours.org.uk/images/made/images/common/Chloe_1_370x280_800_600_s_c1.jpg)
Chloe’s NF1 story
Chloe gives an honest assessment about coming to terms with having NF1 and how it has made her determined & strong
Read More![](https://nervetumours.org.uk/images/made/images/common/KarennArtboard-1_500_572_s_c1_370x280_800_600_s_c1.jpg)
“Happy Easter”
A message from Karen, our Charity Director, wishing you a very Happy Easter!
Read More![](https://nervetumours.org.uk/images/made/images/common/image0_(2)370x280_800_600_s_c1.jpg)
Lisa helps Shine a Light on Neurofibromatosis in Belfast
Lisa has NF1, & lobbied the Belfast Lord Mayor to get Belfast City Hall lit up blue on Neurofibromatosis Day, 17th May
Read More![](https://nervetumours.org.uk/images/made/images/common/20170430_104321_370x280_800_600_s_c1.jpg)
Alex’s NF1 story
Alex describes her life with NF1, growing up in care, doing adaptive boxing & gym classes & getting NCFE Care qualifications
Read More![](https://nervetumours.org.uk/images/made/images/common/874A4A6E-C1C4-4F33-88A7-7BBF8ABBF870_370x280_800_600_s_c1.jpg)
Sumeeth’s Schwannoma story
Sumeeth, thought nothing of a muscle twitch after a hangover - it was the first symptom that led to a Schwannoma diagnosis
Read More![](https://nervetumours.org.uk/images/made/images/common/quino-al-rK_nz3DswX4-unsplash_370x280_800_600_s_c1.jpg)
Laura’s NF1 story
Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/queen-mary-logo_370x280_800_600_s_c1.jpg)
Disfigurement equality at work - research
This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements
Read More![](https://nervetumours.org.uk/images/made/images/common/Comedy_night_370x280_800_600_s_c1.jpg)
RAISING THE ROOF: CHARITY COMEDY NIGHT IN AID OF NERVE TUMOURS UK
Join us in London on our first comedy night to celebrate 40 years of Nerve Tumours UK
Read More