Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/collage_370x280_800_600_s_c1.jpg)
#BackThe1in6
Read the My Neuro Survey findings from the Neurological Alliance & sign the petition for a Neuro Taskforce to deliver change
Read More![](https://nervetumours.org.uk/images/made/images/common/20220517_154319_370x280_800_600_s_c1.jpg)
Austin’s NF1 story
Austin's mother, Katie, describes how local biker clubs have helped to support Austin since his NF1 diagnosis
Read More![](https://nervetumours.org.uk/images/made/images/common/comedy_circuit_2022_cover_370x280_800_600_s_c1.jpg)
NTUK Comedy Circuit 2022
Three more dates for your diary: Manchester 14/6, Newcastle 12/7, Glasgow 14/7. Altogether now: "Happy birthday NTUK!"
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_0480_370x280_800_600_s_c1.jpg)
RideLondon-Essex 2022
Thank you to our RideLondon-Essex 2022 cyclists! Click here for some great photos from the day
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG-20210510-WA0022_370x280_800_600_s_c1.jpg)
Pat’s Triathlon Challenge
Pat is taking on a 3 day triathlon style challenge to raise awareness & funds for Neurofibromatosis research & support
Read More![](https://nervetumours.org.uk/images/made/images/common/Emily_Owen_370x280_800_600_s_c1.jpg)
World Neurofibromatosis Type 2 Day and 40 Years of NTUK
A celebration and call out to get involved, ask questions and join the community with Emily Owen
Read More![](https://nervetumours.org.uk/images/made/images/common/Edinburgh_Castle_2_370x280_800_600_s_c1.jpg)
Shine A Light 2022 Success!
The Shine A Light 2022 campaign had over 200 buildings around the UK & the Republic of Ireland lit up in blue!
Read More![](https://nervetumours.org.uk/images/made/images/common/Xander_1_370x280_800_600_s_c1.jpg)
NF1 & our Xander
Xander's parents have a unique fundraiser raffle, especially for LITRPG fans, with the aim of raising awareness of NF
Read More![](https://nervetumours.org.uk/images/made/images/common/Freecycle_route_370x280_800_600_s_c1.jpg)
RideLondon FreeCycle Sunday 29th May
Join Nerve Tumours UK on the official RideLondon Day 29th May 2022
Read More