NF1 Army’s incredible 10 million steps fundraiser!
02 July 2020
Our most recent fundraiser has been completed in lockdown. In June 2020 a group of us embarked upon a mission to walk 10 Million Steps between us to raise money for 'NF1 Army'. NF1 Army is a fundraising mission I set myself just over a year ago now and it has so far raised just over £12,000. It started out as a personal mission to raise more awareness and support more research after my daughter Jessica was diagnosed with NF1. It has become a real team effort and there is a great sense of community around all of our fundraisers which we really enjoy.
The money we raise will help to fund research at Manchester Children's Hospital as Jessica has been supported by them throughout her life and in the process we are also raising lots of much needed awareness for NF1. I realised early after Jessica had been diagnosed that not enough people have heard of this condition and I am determined to change that and make a difference through the fundraising we do.
'Team 10 Million' has been fantastic.
NF1 Army FaceBook PageWe have been recording and reporting in our steps daily on our Facebook page 'Team 10 Million' and supporting each other along the journey. We've had some amazing achievements and fun with our Wall's of Fame -
30k Steps Wall of Fame
40k Steps Wall of Fame
50k Steps Wall of Fame
Most importantly we've been a team and every step really did count. We reached and exceeded our goal and raised over £2000 in the process which we are overjoyed about. I genuinely believe that we can make a positive change if we all come together and start to spread the word.
Filter News
Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read MoreEashan’s NF1 story
'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.
Read More2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read MoreDisclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison
Read MoreJo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read MoreNigel’s story - Normal is as normal does
Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2
Read MoreWorld Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read MoreCAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
Read MoreNF Academy 2023 - Ella’s Blog
Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe
Read More