Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News
Laura’s fundraising for Shine A Light 2026
Laura and her mum fundraised for World NF Day on Sunday 17 May.
Read More
Ralph’s NF1 Story
Three year old Ralph has NF1 and has been undergoing treatment to preserve his eyesight, read his story.
Read More
Mel’s Swimming Challenge
Specialist NF Nurse/ Advisor Mel Murrell is going to great lengths with her swimming challenge!
Read More
Reflecting on World NF Awareness Month 2026
Looking back on World NF Awareness Month 2026.
Read More
Nerve Tumours UK Virtual Coffee Mornings
Chat and connect in our Virtual Coffee Mornings. NF2 Coffee Morning on 1st July 2026
Read More
Raising Awareness: Georgia’s Blog
My name is Georgia Baum, I’m 25 years old and an Ambassador for Nerve Tumours UK. Read my Blog and follow my journey!
Read More
NF2 and Us: Our Story
Read about Reece and his family, and their experiences living with NF2.
Read More
BSL Course Places For Those With NF2
We have a number of places available for members of the NF2 Community to study and learn British Sign Language (BSL) online.
Read More