Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News
Milton Keynes NF1 Medical Information Day 2026
Register for our Milton Keynes NF1 Medical Information Day on 9 May 2026
Read More
Rare Disease Day 2026: Equity for Rare
A look back on Rare Disease Day: Equity for Rare, 28 February 2026.
Read More
Melanie’s Ironman challenge
Melanie reflects on her journey to complete Ironman Copenhagen, in memory of her cousin Ben who had NF1
Read More
Fyling Fest Fundraiser
Fyling Fest 2025: Sunshine, music & a whole lot of heart in the Rose Garden - all in support of Bea
Read More
Bea’s Story: Courage and Resilience
Bea, 'Bringer of Joy', never stops smiling despite her condition & NF1 related complications - read her story
Read More
Margaret’s Story
Margaret reflects on life with NF and her involvement with the charity since its early days
Read More
Repurposing anti-retroviral drugs to treat NF2 related tumours Retreat Study
Join a brand new study treating tumours in NF2 patients.
Read More
Raising Awareness Georgia’s Blog
My name is Georgia Baum, I’m 25 years old and an Ambassador for Nerve Tumours UK. Read my Blog and follow my journey!
Read More