Be as creative as Faye – Follow her social distance fundraising example!
21 January 2021
Faye decided that lockdown wasn’t going to stop her from supporting her sister, Lilly who has Neurofibromatosis type 1 (NF1). Lilly was first diagnosed with NF1 at the age of 5, after her parents noticed some strange bruise-like patches on her face and more dense freckling on her body as she got older. Lilly and her family starred in our Shine a Light on Neurofibromatosis movie, where they help to shed light on the challenges they face as a family and the invaluable support that our Specialist NF Nurses have provided, helping them to tackle each hurdle as it occurs.
Faye used one of her home-schooling days to think outside the box and “raise some money for Lilly’s charity to help Lilly”, says Mum, Sarah.
She then took it upon herself to start making “glitter bottles, drawing her own colouring books, making bracelets and pattern pictures. She then set up a little table, complete with hand sanitiser, placing it outside the house with a sign explaining what she was doing and why.”
Faye’s creative efforts ended up raising a substantial amount for Nerve Tumours UK.
“We are so proud of her and Lilly was overwhelmed.” – Mum, Sarah
You can follow Faye’s example and get creative with your fundraising! Social distancing shouldn’t stop us from helping others where we can. For inspiration check out our Fun-Raising article below.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Inform_800_600_s_c1.png)
First Diagnosis Survey
A survey to improve NF diagnosis support by gathering feedback on early experiences and concerns from those affected.
Read More![](https://nervetumours.org.uk/images/made/images/common/Karen_Cockburn__Charity_Director_(3)_800_600_s_c1.jpg)
Working with the hospitality industry & creating safe spaces for everyone
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_-_2025-02-03T143712.302_800_600_s_c1.jpg)
Visible Differences: Changing The Narrative
Nerve Tumours UK joins multi-organisational workshop to enhance support for those with a visible difference
Read More![](https://nervetumours.org.uk/images/common/Untitled_design_-_2025-01-29T112429.522.jpg)
Repurposing anti-retroviral drugs to treat NF2 related tumours Retreat Study
Join a brand new study treating tumours in NF2 patients.
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_(50)_800_600_s_c1.png)
Nerve Tumours UK joins the Neurological Alliance of Scotland
Nerve Tumours UK joins the Neurological Alliance of Scotland.
Read More![](https://nervetumours.org.uk/images/made/images/common/Untitled_design_(51)_800_600_s_c1.png)
Brain scans to give crucial insight into childhood genetic disease
New funding secured for exciting new global research initiative.
Read More![](https://nervetumours.org.uk/images/made/images/common/Road_Banner_1_800_600_s_c1.png)
Looking Back, Moving Forward: A Message from Our Charity Director
Read More![](https://nervetumours.org.uk/images/made/images/common/461673450_10169430984830371_375012236727486905_n_800_600_s_c1.jpg)
Oliver’s Blog
Oliver Bromley shares some personal experiences of visible difference, and how education and kindness can reduce stigma.
Read More![](https://nervetumours.org.uk/images/made/images/common/Ellen3_800_600_s_c1.jpg)
Ellen’s Story
Read Ellen's story, how she recovered from 'radical surgery' and why she's raising funds for NTUK.
Read More