Helpline 07939 046 030

We’re Here for You, Our NF Community.

09 September 2020

Hello Everyone,

I just wanted to say a very big thank you to absolutely everyone, who has helped us to keep the charity running as usual: by their fundraising efforts; assistance and guidance; and also those who helped to keep up our spirits in the “virtual” head office, over the last six months. Members, supporters, friends, families, the NF medical teams at St Mary’s and Guys & St. Thomas’ and even our local MP! Thank you, to each and every one of you!

We are not sure what the next six months, or even the next year, will bring, but we’re here to take your calls and help where we can. This is a whole new territory for all of us, so please bear with us if things take a little longer, we will all get sorted in the end, but do let me know if there are any major issues, and we will try to help.

We are aiming to move back to the office in the next couple of weeks, a very different looking office as we will all be working behind screens, etc, and apparently you can no longer even share biscuits …….but it will be lovely to be back there with the team!

The shop distribution should return to normal, which is especially important as we will soon launch the sale of our Christmas Cards and other festive items! In the meantime, if anyone has any imaginative and inspiring ideas about how we can raise funds safely in this new, odd world that we live and work in, please do let the team know.

Please do continue to follow the Government guidelines and do take care.

With my very best wishes,
Karen

Filter News

Filter by Date
Category
Reset

Nerve Tumours UK Lottery

Read how the NTUK Lottery helps make a difference to the NF Community

Read More

Manchester Comedy Night

Manchester's Frog & Bucket Comedy Club hosted the 2nd date on the NTUK 2022 comedy circuit

Read More

Medical Photography of dermatological conditions - research

Research study: Patient perceptions of medical photography of dermatological conditions

Read More

#BackThe1in6

Read the My Neuro Survey findings from the Neurological Alliance & sign the petition for a Neuro Taskforce to deliver change

Read More

Austin’s NF1 story

Austin's mother, Katie, describes how local biker clubs have helped to support Austin since his NF1 diagnosis

Read More

NTUK Comedy Circuit 2022

Three more dates for your diary: Manchester 14/6, Newcastle 12/7, Glasgow 14/7. Altogether now: "Happy birthday NTUK!"

Read More

RideLondon-Essex 2022

Thank you to our RideLondon-Essex 2022 cyclists! Click here for some great photos from the day

Read More

Pat’s Triathlon Challenge

Pat is taking on a 3 day triathlon style challenge to raise awareness & funds for Neurofibromatosis research & support

Read More

World Neurofibromatosis Type 2 Day and 40 Years of NTUK

A celebration and call out to get involved, ask questions and join the community with Emily Owen

Read More