Helpline 07939 046 030

We’re Here for You, Our NF Community.

09 September 2020

Hello Everyone,

I just wanted to say a very big thank you to absolutely everyone, who has helped us to keep the charity running as usual: by their fundraising efforts; assistance and guidance; and also those who helped to keep up our spirits in the “virtual” head office, over the last six months. Members, supporters, friends, families, the NF medical teams at St Mary’s and Guys & St. Thomas’ and even our local MP! Thank you, to each and every one of you!

We are not sure what the next six months, or even the next year, will bring, but we’re here to take your calls and help where we can. This is a whole new territory for all of us, so please bear with us if things take a little longer, we will all get sorted in the end, but do let me know if there are any major issues, and we will try to help.

We are aiming to move back to the office in the next couple of weeks, a very different looking office as we will all be working behind screens, etc, and apparently you can no longer even share biscuits …….but it will be lovely to be back there with the team!

The shop distribution should return to normal, which is especially important as we will soon launch the sale of our Christmas Cards and other festive items! In the meantime, if anyone has any imaginative and inspiring ideas about how we can raise funds safely in this new, odd world that we live and work in, please do let the team know.

Please do continue to follow the Government guidelines and do take care.

With my very best wishes,
Karen

Filter News

Filter by Date
Category
Reset

Diana’s 1 Month of Rowing for Neurofibromatosis

Diana is taking on an epic 150k rowing challenge - 5k per day to support her daughter Ellie & our NF community

Read More

The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!

Check out the year's first major running event - see how our NTUK running team got on!

Read More

Alex’s 12 months of Running

Alex has nearly completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!

Read More

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Colin’s West Highland Walk for NF

Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.

Read More

Kian’s NF2 Blog

Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics

Read More

To Infinity & Beyond!

Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!

Read More

Runderpants 2021/22 Is Back!

Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!

Read More

TABI (Teen Appearance and Body Image) - CAR Research Study

Find out how you can take part in the Centre for Appearance Research's study for Young People

Read More