Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Team NTUK London Marathon 2023
Meet some of our runners and read their inspiring marathon motivation stories
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Pip describes life with NF1 & limited vision and his motivation to run the London Marathon
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NTUK attended the Scottish Parliament Rare Disease Day online reception
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Dan and Derry will be taking on the London Marathon in support of Nerve Tumours UK
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NTUK joined in with Rare Disease Day 2023, helping raise awareness of how better coordination of care can improve lives.
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Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
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