Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Jensen’s NF1 story
Stuart describes Jensen's first days post birth, subsequent diagnosis of NF1 plus his & wife Claire's hopes for his future
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TSL’s Charity of the Year
Specialist Nurse Tracey Kenyon launches TSL’s corporate funding to introduce NTUK & welcome guest of honour, 2 year old Evie
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Online – Accessibility – We have the tools to help!
The NTUK website has accessibility tools to give you easier access to online & digital content
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My life with Pheo
This story, written by someone with NF1, describes symptoms leading to a phaeochromocytoma diagnosis
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Resources Survey: Initial Diagnosis 2023
We received many responses to our survey asking what would you have found helpful after your initial diagnosis
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Community Fundraising Call Out
Calling all community fundraisers - we need your help, please!
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Owen family Awareness Event
The event featured guest speaker Prof. Meena Upadhyaya OBE, Member of our Board of Trustees & Medical Advisory Board
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Running for Wilbur
Tim is running the Guildford 10k in October, to show support to his son Wilbur who has NF1
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Alice’s NF studies
Alice is researching healthcare experiences of individuals with NF1 for her Genetic & Genomic Counselling MSc
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