Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Shine A Light 2023
The Shine A Light 2023 campaign had 162 buildings around the UK & the Republic of Ireland lit up in blue!
Read MoreChristine’s Coronation fundraising
Christine has been fundraising for NTUK for 10 years, since her grandson was diagnosed with NF1.
Read MoreMegan’s NF1 story
Megan has NF1 & other complications: "I will always live my life to the fullest and not let my diagnosis stand in my way"
Read MoreShine a Light May 2023
Shine A Light Activities during World NF Month May 2023 - Get Involved!
Read MoreCharlotte’s NF1 story
Charlotte and her brother & dad have NF1. She is running the Shine a Light Marathon during May to raise awareness
Read MoreBe seen, be counted: #PicsForThe1in6
Be part of the Neurological Alliance's photo collage, representing people with neurological conditions
Read MoreUnderstand the experience of adults living with Neurofibromatosis Type I with Plexiform Neurofibromas (NF1 PN)
Research to understand the reality of the NF1 PN journey from diagnosis to daily life, and the emotional impact that has
Read MoreNerve Tumours UK Art Drop 17 May 2023
White Label Editions & artist Anna van den Hoelden are fundraising by selling unlimited prints of World Strips III on 17 May
Read More