Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Jen’s NF1 story
Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.
Read MoreCharlotte & Evie’s story
'Sticker Queen' Evie is 4 years old and was diagnosed with NF1 after tests for a 'lazy eye'.
Read MoreLuke’s Story
Luke had NF1 since childhood. Now an adult, surgery last year has enabled him to play football and do whatever he wants
Read MoreCharlotte’s Story
When Charlotte was 6, she was diagnosed with NF1, along with her brother & dad. Now she is on a mission to raise awareness
Read MoreEden P for healthcare professionals
Healthcare professionals, who provide support to expectant parents with NF1 are invited to take part in the Eden P study
Read MoreNicole’s story
Nicole has NF2, she describes the preparations and the absolute joyful experience of the birth of her son Lewis
Read MoreCAR Research - exploring family planning decisions
Research Advisors required to help explore what influences decisions about having children and what support would be helpful
Read MoreCorporate Fundraising 2024
Find out some of the different ways your company can support Nerve Tumours UK
Read MoreMatthew’s story
Matthew, who has NF2 and is a dedicated Scout, has been awarded the prestigious Cornwell Scout Badge
Read More