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Stitched up by Celia

28 January 2021

Celia, from the Scottish Highlands, continued to support Nerve Tumours UK throughout lockdown with her unique handicrafts, selling her products online.

Follow her example and get creative with your online fundraising ideas – who knows what incredible ideas you may come up with!

In her own words "My 10-year-old granddaughter was diagnosed with NF1 as a 14-month-old and the family became aware of Nerve Tumours UK from the beginning. When I retired in 2015, I realised I had more time to indulge my passion for sewing and knitting, but would soon have kitted out all the family with things they probably didn't really need, so I decided to make things for charity, and Nerve Tumours UK seemed the obvious choice.
 

I just make what I feel like as I sew and knit for pleasure...

I do not sew and knit to order as I don't want to put myself under that pressure. Selling is not easy up here in the Scottish Highlands and I have, in the past, had stalls at community markets and Christmas fairs. This was not possible in 2020, so I decided to try to sell through my Facebook page which proved more successful, though not so much fun!

I am hoping to sustain my output so, hopefully, there will be another donation for 2021!"

If you have any fundraising ideas, please contact us info@nervetumours.uk or have a look at the following.

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Nerve Tumours UK attends Royal College of Nursing Congress

Find out more about the RCN Congress and Nerve Tumours UK participation here:

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Ava’s amazing work on World NF Awareness Day

15 year old Ava managed to generate awareness across the World as part of WNFAD read more about it here:

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Face Equality International Week

Find out more about the crucial campaign Face Equality International Week

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Face Equality International - Shine A light on Neurofibromatosis

This year International Face Equality Week overlaps with World NF Awareness Day. Have a read of our collaboration here:

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Shine a Light on Neurofibromatosis 2019 on big screens near you!

Check out the areas where you can find eletronic billboards across the UK promoting our Shine a Light message

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Mary Thomas wins Specialist Nurse of the Year 2019!

Have a read about the Guy's and St Thomas' Celebration of International Nurses Day here

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Luke and his NF Ninjas

Have a read of Luke's story of growing up with NF and how he plans to bring his chidren up proud of their NF as well.

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Stannington Community Association’s Easter Fête

Stannington Community Association's Easter Fête was a success! Read about this years superb event here:

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London Marathon 2019: 26 hard miles for 26,500 people affected

Thank you so much to all our incredible Marathon runners for going the extra mile (or 26)!

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

Website by Optima.

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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