Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses
Mary
Clinical Nurse NF Specialist
Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News
Ashley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
Read MoreGuy’s & St.Thomas’s Monthly Care Awards
NF paediatric nursing team, Mandy and Katrina win the Guy’s and St Thomas’ Hospital November CARE Award 2022
Read MoreCost of Living Crisis - Initiative
NTUK have co-signed an open letter to the Chancellor of the Exchequer on the cost of living
Read MoreGuy’s Hospital NF Centre Coffee Meetings
Guy's Hospital Neurofibromatosis Centre Coffee Club 2024
Read MoreLiving with NF1: psychological impact & experiences
Research: Understanding the reality of the NF1 journey from diagnosis to daily life, and the emotional impact it has
Read MoreKian’s NF2 Blog
Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics
Read MoreUnion Chapel London Comedy night
Check out these superb photos from our final comedy night of the year
Read MoreJoanna’s story
Joanna highlights the importance of women with NF1 receiving mammograms, and being able to train for the 2023 London Marathon
Read More