Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses
![](/images/common/Catherine__Bridie_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Mary
Clinical Nurse NF Specialist
![](/images/common/Mary_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
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Celtic Crossing NTUK fundraiser
On Wednesday 28 June, a team of 8, led by Paul Aubery, paddled from the Isles of Scilly to Sennen Cove in Cornwall.
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NF Awareness Day Fundraiser at Fyling Hall School
Bea's school held a blue & green themed fundraiser on World NF Awareness Day
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Eden Study
Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1
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Bethany’s South Coast Challenge
Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery
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Eden-P Research Study
Participants required for research study for pregnant women who have a family history of NF1
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Resources Survey: Initial Diagnosis
Take part in our survey and help shape Nerve Tumours UK's support service for those newly diagnosed with NF
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Appearance Collective NF1 support survey
Appearance Collective, Centre of Appearance Research (UWE) online survey on what support is needed for those affected by NF1
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Shine A Light - Swimming for World NF Day
Mel, one of our Specialist NF Nurses, will be swimming 17 miles to Shine a Light during World NF Month
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